Emily is the Southern California Regional Development Leader for the Adult Congenital Heart Association. In this week's episode, she shares her story of having Shone syndrome, a congenital heart defect. She was diagnosed at 6 months, went into heart failure at age 15 and has had four open heart surgeries.
We discuss the medical advancements that has helped adults with a congenital heart disease live longer and the ability to not only have a good quality of life, but thrive!
Once she started to feel better, she wanted to devour this thing called life and seize every moment. Listen now to learn why she feels having a congenital heart disease is one of the greatest things to happen to her.
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