Sarc Fighter: Living with Sarcoidosis and other rare diseases
Health & Fitness:Medicine
For KevinMcDevitt, sarcoidosis went from an annoyance in his golf game to a life-threatening heart condition. In Episode 30 of the Sarc Fighter podcast, Kevin tells about how things went from not so bad to awful very quickly. Yet he is fighting back and 2021 promises to be much better for him than 2020.
Like many people, Kevin has fought his battle on two fronts -- with traditional medicine and an adjustment to his diet and lifestyle. In this podcast Keven shares the details of his harrowing battle with sarcoidosis and all he is doing to get his body and his life back under control.
Also in this episode, I'll tell you about my attempt at the Elimination Diet. As of this recording, I am 2/3 of the way through the 3 week diet that forbids sugar, dairy and grains. Plus a bunch of other stuff. I am doing this under the guidance of Lindsey Norenberg, of Nourish by Lindsey -- whose husband, Ryan joined me on Episode 27 to talk about how he is fighting the inflammation in his body through the use of an anti-inflammatory diet as well as CBD oil. I hope you enjoy my update and continue to follow along with my progress as I slowly begin to add foods back to see what might trigger an inflammatory response!
Here are links mentioned in the podcast, beginning with those from Kevin.
Parasarcoisosis::
More on aTyr Pharma: https://www.atyrpharma.com/
Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser!
If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier
You can listen on You Tube as well. https://www.youtube.com/watch?v=MCbA3EDJ6Ak&list=OLAK5uy_ktdC7Pn7_ezhy4ZJzV_u7o76bqIv6cC6o
The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/
Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E
My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/
email me carlinagency@gmail.com
Sarc Fighter Facebook Page https://www.facebook.com/SarcFighter/
Sarc Fighter on Instagram https://www.instagram.com/thesarcfighter/
Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/
Background on Elimination Diet: https://www.healthline.com/nutrition/elimination-diet
Episode 56 | Dr. Shu-Yi Liao wants to know how sarcoidosis moves in the body.
Episode 55 | Erica Courtenay-Mann Has Sarcoidosis on her Vocal Cords. But she is speaking out!
Bonus Episode | Universal Barriers in Dealing with a Chronic Disease: A Sarcoidosis Perspective
Episode 52 | Dr Divya Patel and Novartis are looking for a few good Sarc patients
Episode 54 | Calvin Harris’ lungs are clogged with Sarcoidosis -- but he wants to run a marathon.
Episode 53 | Reasons for hope in the fight against Sarcoidosis in 2022
Episode 51 | Amy Whaley fights on through a life that was different than she imagined.
Episode 50 | Warren Robinson‘s father died suddenly. And the family struggled to find out why.
Episode 49 | Adam Bernardi has sarc in all the wrong places.
Episode 48 | Dr. Jinny Tavee is a neurosarcoidosis specialist with a unique approach to fighting the disease
Episode 47 | Women of Color Fight Back!
Episode 46 | Lisa Pflug is early in her journey with neurosarcoidosis, but already suffering the effects.
Episode 45 | Fantastic results from trial of new sarcoidosis drug from aTyr Pharma
Episode 44 | Brandi Cleaver faces down what may be a terminal case of sarcoidosis.
Episode 43 | Joe McCorry has been fighting Sarcoidosis for a long, long time.
Episode 42 | Juliet Coffer can barely walk without losing her breath. But she was determined to step up to fight sarcoidosis.
Episode 41| Dr. Matt Baker is researching a promising new drug to fight sarc at Stanford University.
Episode 40 | Writer Rebecca Stanfel is bringing the sarcoidosis message to the masses. And, man, does she know the story.
Episode 39 | Dr. William Damsky may be on the verge of a sarcoidosis breakthrough.
Episode 38 | Sarcoidosis is world wide. How they fight it in the UK
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