2. Dealing with parental anxiety

For parents of those with rare bone marrow conditions, life can be exceedingly stressful. How can you manage this anxiety and support their child well? 

Conditions mentioned in this episode: Fanconi Anaemia, Shwachman Diamond Syndrome, Dyskeratosis Congenita.

Further reading:

fanconihope.org
sdsuk.org
dcaction.org
theaat.org.uk
super-rare.org