Holding On and Letting Go: Karen’s Care Partner Story

Karen McLean describes life after her husband Scott was diagnosed with early-onset Alzheimer’s at age 52. She recalls the first subtle changes, the rapid decline that followed and the decision to move Scott into full-time care. Karen speaks openly about exhaustion, care-partner burnout and the support she receives from the Alzheimer Society community.

Key Takeaways

• Early Signs and Diagnosis – Subtle mood and behaviour shifts pointed to something deeper.

• Care-Partner Strain – Physical fatigue and emotional stress build quickly; burnout is real.

• Community Response – Positive support from neighbours, professionals and friends matters.

• Family Impact – Loved ones grieve before a physical loss, and Karen’s daughter feels she “lost Dad twice.”

• Role of the Alzheimer Society – Education, counselling, and peer groups provide critical relief

Resources

• HelpForDementia.ca – Information, support, and programs for people living with dementia and their care partners

• Alzheimer.ab.ca – Free education and services for families and care partners

• AlzheimersFaceOff.ca – Edmonton-based hockey tournament that raises funds for free dementia education, support services and research