4. How to find your tribe

Loneliness is rife among people living with rare blood disorders. But there’s a whole community of people out there who are willing to connect. How are people with similar conditions finding each other?

Conditions mentioned in this episode: Fanconi anemia, Aplastic Anaemia, Paroxysmal Nocturnal Haemoglobinuria

Further Reading:

super-rare.org
theaat.org.uk
pnhuk.org
fanconihope.org