In this podcast, Prof Bernard Dan, Editor in Chief of the DMCN, and Prof Peter Rosenbaum review the book Children and Youth with Complex Cerebral Palsy: Care and Management, edited by Laurie J Glader and Richard D Stevenson. You can purchase the book here https://www.wiley.com/en-gb/Children+and+Youth+with+Complex+Cerebral+Palsy%3A+Care+and+Management-p-9781909962989
Children with complex cerebral palsy (typically, but not always, GMFCS levels IV and V) require skilled management and extensive expertise which can be overwhelming or intimidating for many clinical practitioners. This book explores management of the many medical comorbidities these children encounter, including orthopedic concerns, mobility and equipment needs, cognition and sensory impairment, difficult behaviors, seizures, respiratory complications and nutritional challenges, among many others. In addition, adaptable care tools are provided to guide clinicians in evaluation, preventive care and crisis management.
Importantly, the book includes contributions from parents of children with cerebral palsy and youth with cerebral palsy, providing unique and critical wisdom for family-centred care. Parents and families of children and youth with complex cerebral palsy will particularly appreciate the inclusion of chapters on adolescence, transition to adulthood, and growing up well with cerebral palsy.
• The first practical guide to focus exclusively on children with more severe or complex forms of cerebral palsy
• Summary points at the end of each chapter provide at-a-glance access to key recommendations
• Downloadable Care Tools include a Health Review for Children; an Equipment, Supplies and Supports Checklist; and an ICF-Based Care: Goals and Management Form
Mac Keith Press are a leading publisher of paediatric neurology books and the journal Developmental Medicine and Child Neurology (DMCN).
BART and distraction therapy for pain in children undergoing BoNT-A injections | Ostojic | DMCN
Self-determination of people with profound intellectual and multiple disabilities | Skarsaune | DMCN
Participation of young people with CP in daily activities: Uganda | Kakooza-Mwesige & Wanjala | DMCN
Neonatal conventional EEG monitoring in HIE during therapeutic hypothermia | Bourel-Ponchel | DMCN
Post-neonatally acquired cerebral palsy in Australia, 1973–2012 | Waight | DMCN
Excitability of the radiculo-medullary circuitry in spastic cerebral palsy | Georgoulis | DMCN
Gross motor function prediction using natural language processing in CP | Greve & Miley | DMCN
Motor development in infants with CCHD: a longitudinal study | Huisenga | DMCN
Evidence-based practice: how is this conceptualized and applied? | Green, Saloojee & Buckley | DMCN
Clinical, electrophysiological, & imaging findings in childhood brachial plexus injury | Kang | DMCN
Financial cost & QoL of patients with SMA identified by symptoms/newborn screening | Servais | DMCN
Pain trajectories and well-being in children & young people with CP: A cohort study | Shearer | DMCN
Global South perspectives on childhood neurodevelopmental disability | Mbazzi & Kawesa | DMCN
Lived experiences of adolescents with fetal alcohol spectrum disorder | Skorka | DMCN
Early respiratory & neurodevelopmental outcomes in infants born preterm | Yu | DMCN China
Early respiratory trajectories & neurodevelopmental outcomes in infants born preterm | Yu | DMCN
Early intervention for very young children with/at high likelihood for ASD: reviews | Franz | DMCN
Early identification of/intervention for children with/at risk of DCD | Zwicker | DMCN
Is cerebral palsy progressive? Why do we ask? | Rosenbaum | DMCN
Use of health services and unmet needs among adults with CP in Ireland | Manikandan & Weldon | DMCN
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