What is going on you beautiful people?
Today we sit down in the home of Skye Miu Steppe. Skye has a rare genetic disease called Fibrous Dysplasia. In this episode, she shares her lifelong journey of living with the disease and how that led her to become an advocate for other rare childhood diseases as well.
Prior to meeting Skye, I had no idea of just how prevalent things like this was. She first reached out to me because her mom had been on my podcast and Skye was interested in starting her own podcast. I asked her what she wanted her podcast to be about and she said rare childhood disease. That's when she started telling me her story. I suggested that we should do a podcast about it and that way she could get an idea on how to do this. A few days later I learn that a family member had a child suffering from a rare skin disease and they had asked that I do a podcast on it. Weird, huh? Coincidence, huh? Or, maybe, just maybe, all things are spiritual.
If you would like to learn more about Fibrous Dysplasia, rare childhood disease and how you can get involved in raising awareness, go visit Skye's website "FD Warriors". You can also find her organization on the following social media platforms.
Facebook: https://www.facebook.com/FDwarriors/
Twitter: https://twitter.com/skyemiusteppe?s=09
Instagram: https://www.instagram.com/fdwarriors/
Episode 028 - Strangers and Sojourners....I was invited to speak to Druids and Pagans!
Episode 027 - Lynda Salisbury
Episode 026 - Swallowed by Anxiety and Depression
Episode 025 - The Art of T’Shuva (Part 3) Special guest, my mom, Linda Bridwell
Episode 024 - The funeral of Tyler Terry
Episode 022 - You too can start a Podcast
Episode 023 - The Art of T’Shuva (Part 2) Special guest, my mom, Linda Bridwell
Episode 021 - The Art of T'Shuva (Part 1) Special guest, my mom, Linda Bridwell
Episode 020 - On Suicide Part 2
Episode 019 - On Suicide Part 1
Episode 018 - Be The Tree
Episode 017 - Let's go to church! Proverbs 4, thoughts from living on the farm.
Episode 016 - No, the Bible does not teach that being gay is a sin!
Episode 015 - Star Mountain Paranormal Research and Investigation and Haunted Adventures
Episode 014 - Ms US World, Ashley Ingram
Episode 013 - Christy Miu of Creekside Massage & Yoga Studio
Episode 012 - Dr. Sarah Philpott, author of Loved Baby: 31 Devotions Helping You Grieve and Cherish Your Child after Pregnancy Loss
Episode - 011 Corbin Payne
Episode 010 -Lauren Griffeth Trew
Episode 009 - Kelly Kloberdanz Kaus
Join Podbean Ads Marketplace and connect with engaged listeners.
Advertise Today
Create your
podcast in
minutes
It is Free