Wait, How Do You Spell That? A Rare Disease Podcast
Health & Fitness
This week, we talk to patient advocate and FA ambassador for the Friedreich's ataxia Research Alliance, Kyle Bryant, about the importance of getting involved in rare disease communities. To learn more about Friedreich's ataxia, visit curefa.org. Listen to Kyle's podcast, Two Disabled Dudes, at twodisableddudes.com.
Bridging the Challenges in Cell Therapies, feat. Dr. Brad Heller of Achieve Clinics
The Potential of CAR T-Cell Therapy, Feat. Dr. Robyn Stacy-Humphries
Not Just Surviving, But Thriving With Pheo vs. Fabulous
Hanging Onto Hope in the Face of AML
The Importance of Connection With Jordan‘s Guardian Angels
Awareness and Improvement: Discussing Narcolepsy With a Sleep Medicine Doctor
A Lifetime of Research with Dr. Cannon of the Periodic Paralysis Association
Building the Connections with the SYNGAP Research Fund
Making the "Invisible," Visible With Journalist Karina Sturm
Cure Mito Foundation: The Importance of Patient Registries
37 Years of Research With the TSC Alliance
Staying Strong and Pressing On With the Alagille Syndrome Alliance
Living Rare, Living Stronger: NORD Patient and Family Forum
Author Tom Seaman Talks About Adapting to Adversity
Sophie's Hope and GSD1B
Pemphigus and Pemphigoid: Talking Rare Disease Dermatology
The 2021RAREis Scholarship
Narcolepsy: A 20-Year Journey to Diagnosis
Sharing Patient Voices With Elephants and Tea
Join Podbean Ads Marketplace and connect with engaged listeners.
Advertise Today
Create your
podcast in
minutes
It is Free
The Relaxback UK Show
Your Sleep Guru Podcast
Good Nurse Bad Nurse
Nothing much happens: bedtime stories to help you sleep
این نقطه