Sarc Fighter: Living with Sarcoidosis and other rare diseases
Health & Fitness:Medicine
Kerry Wong of Westchester, New York has an all too familiar story. Years and years of misdiagnosis followed by the ultimate discovery of sarcoidosis. When it was finally diagnosed, it gave her some answers but not much relief.
Note: Kerry had many great fundraisers planned for 2020 that were canceled because of the Coronavirus pandemic -- including a day at Yankee Stadium -- although we discussed that in the interview, I deleted that portion as it was no longer relevant.
Kerry's KISS and Westchester Support Group: https://www.stopsarcoidosis.org/support-group/kiss-westchester-support-group/
Kerry's article with the U.S. pain Foundation https://uspainfoundation.org/blog/pain-awareness-month-always-aware-of-my-chronic-pain/
Kerry's Support Group in Westchester (may not be meeting until COVID-19 pandemic is over) https://www.burke.org/media/news/2019/11/sarcoidosis-support-group/1971
The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/
FSR Summits 2020 https://www.stopsarcoidosis.org/patient-summits/
Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E
My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/
email me sarcfighter@gmail.com
Sarc Fighter Facebook Page https://www.facebook.com/SarcFighter/
Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/
Episode 76 | Leeanne West is a scientist who discovered Sarcoidosis in her own life.
Episode 75 | FSR Leaders Dr. Louise Perkins and CEO Mary McGowan on all the current progress.
Episode 74 | A Doctor and Two Sarc Fighters Urge Black Americans to Join Clinical Trials
Episode 73 | FSR is looking for a few good volunteers. Maybe you.
Episode 72 | Sarc Fighter Regina Gordon shares her battle.
Episode 71 | Andrew Brandt is fighting back - for all of us.
Episode 70 | Laura Ward thought she had cancer... but it was sarcoidosis.
Episode 69 | Kinevant Sciences is researching namilumab – a potential new drug for sarcoidosis
Episode 68 | Profound thoughts from a dying man.
Episode 67 | Kristi Hedge begins her sarcoidosis journey.
Episode 66 | Unveiling Possibilities - All about the upcoming Sarcoidosis Summit from the Foundation for Sarcoidosis Research
Episode 65 | aTyr Pharma is getting closer to a potential breakthrough in treating Sarcoidosis
Episode 64 | The Leadership Team at the Foundation for Sarcoidosis Research with an exciting announcement!
Episode 63 | The birds and finding contentedness
Episode 62 | Garrie Farrow had troubles wearing her cute shoes. The problem was in her lungs.
Episode 61 | Expectations and Happiness with Sarcoidosis
Episode 60 | Jack Boepple’s cardiac sarcoidosis hit him like a linebacker. And he would know.
Episode 59 | Angelica wants to know how her grandmother died.
Episode 58 | Time to get ready for Sarcoidosis Awareness Month!
Episode 57 | Sarc Patient Robin Goble has lost her balance, but she’s fighting to keep her life upright.
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