We have a special mini-series we’re releasing this week: Engaging in Storytelling: A 3-part collaborative podcast series with SPOR Cast, Matters of Engagement and PEP Talks. We each cover a different angle on patient stories and storytelling – together they provide a rich picture of some of the challenges, concerns, and also opportunities when it comes to engaging in storytelling. We will be sharing all three episodes on our platforms.
This is the 2nd of 3, and it’s produced by us! Organizations and Patient Stories
Our guests are Carol Fancott (Director of Patient Partnerships and Engagement at the newly amalgamated organization that's brought together the Canadian Foundation for Healthcare Improvement and Canadian Patient Safety Institute) and Daniel Z. Buchman (Bioethicist and Independent Scientist at the Center for Addiction and Mental Health, Assistant Professor at the Dalla Lana School of Public Health at the University of Toronto, and member of the University of Toronto Joint Center for Bioethics).
Carol shares her thoughts on patient stories and storytelling based on the subject of her PhD, which is: how organizations use patient stories for learning. We talk about ‘spectating’, control and power, using dialogue to enhance learning, and how stories are just one input of many when it comes to understanding patient experience. Dan then helps us think through some of the moral and ethical implications about what organizations are asking of patients when it comes to telling their story.
[download transcript]
Mentioned in this episode:
Daniel Z. Buchman on twitter
SPORcast on twitter
PEP Talks on twitter
Webinar Extra: Paula Rowland presents Dilemmas of Representation for BPER
Patient-Oriented to Patient-Partnered: Aspirations, Implications, Challenges
Webinar Extra: Podcasts and Patient Engagement - with SPORcast, PEP Talks and Matters of Engagement
Walking a Tightrope: Inside the Engagement Professional Role, with Kelli Dilworth
Research Ethics Boards and Patient Partnership
Engaging in Storytelling, Part 3: "Creating Spaces for Storytellers" - produced by PEP Talks
Engaging in Storytelling, Part 1: "The Patient Story Experience - Cost or Benefit?" by SPORcast"
Vagueness of language, unarticulated assumptions, and maintaining the status quo. With Amy Katz and Melody Morton Ninomiya
Patient Experience as Evidence, with Miles Sibley
Hosts Jennifer and Emily learn to "let go of perfection"
Lived Experience, with Katherine Dib and Katie Birnie of SKIP
Policy development in a pandemic - is there a role for patient partners? With Julie Drury and Christa Haanstra
Reflections on Engagement, with Lorraine, Maureen, Keith and Jess
Evaluating Holland Bloorview's Family Leadership Program, with Aman Sium
Evaluating Patient Engagement, A Conversation with Julia Abelson
Compensation, with Zal Press and Dawn P. Richards
Democratic patient-led councils, the rise of patient engagement, and the erosion of advocacy - with Lucy Costa
Dilemmas of Representation, with Paula Rowland
Expertise Part 2, with Francine Buchanan
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