If We Knew Then - Down Syndrome Podcast
Kids & Family:Parenting
Happy World Down Syndrome Day 2023! In celebration of our community, we are sharing a discussion we had this month with Dr. Eric Rubenstein and his co-researcher team. Dr. Eric is an Assistant Professor in the Department of Epidemiology at Boston University and his research team is comprised of six adults with Down syndrome who engage the research process to create their own project. The team is curious about the mental health of people with Down syndrome and designed a research project to explore people’s experiences with mental health issues and how they find support.
Take the survey: https://bostonu.qualtrics.com/jfe/form/SV_bxyp6tWSkJcoU86
The group is also hosting a webinar on Tuesday, March 21 from 12pm-1:30pm EST
Register for the World Down syndrome Day webinar: https://bostonu.zoom.us/webinar/register/WN_BkU7e9D8TO6HPXSRU2gfpg
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/03/19/136-world-down-syndrome-day-with-dr-eric-rubenstein-and-his-co-researcher-team/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
73. Down Syndrome Awareness Month: Acknowledging Those Who Came Before Us
72. Gifts of the Journey: A Sibling Conversation with Amy Hyde
71. Fasten Your Seatbelts: A Crash Course on Down Syndrome for Brothers and Sisters
70. Insights of a Teenage Sibling: with Sophia Saux
69. Uncertainties About the Return to School? You’re Not Alone.
68. The Importance of Special Needs Trusts and a Conservatorship: with Enrique Perez
67. The Beginner’s Mind: An Interview with Karen Maezen Miller
66. A Conversation About Alzheimer’s with Dr. Brian Skotko
65. The Down Syndrome Resource Foundation, Part 2 with Liv Meriano and Danielle McKinney
64. Changing Our Mind and Approach to Education: Down Syndrome Resource Foundation
63. Just One Of The Guys: Our Interview with Jake Pratt
62. Summer Advocacy: The Challenge Of Letting Go And Taking A Break
61. Hearts Of Joy International: Our Conversation with Lauren Costabile
60. Downright Discrimination - Changing The Laws To Confirm That Every Life Is Equal
59. Education, Adolescence and Advocacy: A Community Conversation with Mary Cole
58. COVID-19, Vaccinations and Picking Up Where We Left Off on the Road to Inclusion with Dr. Brian Skotko
57. Revisiting The Story of Chris Nikic: Becoming an IRONMAN
56. My Twin Brother Has Down Syndrome: Our Community Conversation with Julia Toronczak
55. Coming Down The Mountain, Part 2: Why This Movie is so Important - An Interview with Director Julia Anne Robinson
54. Mother (noun): An Ultimate Example of Its Kind - Our Mother’s Day Message
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