"Lupus Uncovered: What We’re Still Not Talking About"
This powerful and informative script is designed for My Story Living with Lupus during Lupus Awareness Month. In it, host Susan Hendrix reflects on her personal experience living with systemic lupus erythematosus while educating listeners about the complexities of the disease. The script includes clear, reliable information about lupus, addresses common misconceptions, and brings attention to an often-ignored reality—the severe impact lupus has on African American men. With a compassionate tone and a call to action, the script encourages awareness, advocacy, and inclusive conversation around lupus.
Let's Discuss Chronic Pain Syndrome with Dr. Jenny Tufenkian
In this episode of My Story: Living with Lupus, host Susan Hendrix sits down with Dr. Jenny Tufenkian, a renowned expert in Naturopathic Medicine, to explore the complexities of Chronic Pain Syndrome and its impact on those living with lupus. Dr. Tufenkian dives deep into the physiological and emotional aspects of chronic pain, offering valuable insights on how it affects the body, mind, and daily life of individuals with lupus. She also discusses the latest treatments, coping strategies, and self-care techniques to help manage pain. Whether you're living with lupus or supporting someone who is, this episode provides essential information and compassionate advice to help navigate the challenges of chronic pain. Tune in for an enlightening conversation that blends medical expertise with personal understanding.
Planning for Tomorrow: Advance Care Planning
Living with a chronic illness teaches us to expect the unexpected. In this episode we discuss the topic of Advance Care Planning. It's not about giving up or focusing on the worst-case scenarios, it's about taking control, making your wishes known, and ensuring peace of mind for you and your loved ones. I's a very hard topic, but a necessary one. Feed Spot Links Top 100 Chronic Illness Podcasts on the web.https://podcast.feedspot.com/lupus_podcasts/https://podcast.feedspot.com/chronic_illness_podcasts/
Living with Lupus: Figuring Out What's Going On
Living with Lupus: Figuring Out What’s Going On In this episode, we dive into the complexities of living with lupus, an unpredictable autoimmune disease that impacts every part of life. From understanding the early symptoms to navigating the whirlwind of tests, misdiagnoses, and emotional challenges, this is about finding clarity in the chaos. Join me as I share my personal journey of discovering what’s happening inside my body, the questions I had to ask, and the lessons I’ve learned along the way. Whether you’re newly diagnosed, supporting a loved one, or just curious, this episode offers insights, hope, and encouragement for anyone on the path to understanding lupus. Let’s figure it out together!
Unpacking Trump's Sentencing and Its Impact on Healthcare
In this episode of Living with Lupus & Beyond, we delve into the implications of former President Donald Trump's sentencing, where a judge granted him an "unconditional discharge" to respect the presidency. What does this controversial decision mean for the United States, its policies, and those navigating chronic illnesses? We explore Trump’s stated plans to restrict coverage for pre-existing conditions, cut disability payments, and tighten Medicaid eligibility, highlighting how these changes could profoundly affect vulnerable populations. Join us as we unpack the political ripple effects on healthcare and discuss actionable steps to protect our rights and access to care.