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Conquering Your Fibromyalgia Podcast

Conquering Your Fibromyalgia Podcast

Health & Fitness

Ep 161

Ep 161 "You Look Perfectly Healthy to Me." Psychologist Laurie Dos Santos Part 2

2024-07-24
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Text Dr. Lenz any feedback or questions

In this episode, Dr. Michael Lenz, a seasoned pediatrician and internist, resumes his conversation with clinical psychologist Dr. Laurie Dos Santos. They delve into the complexities of supporting individuals with chronic medical conditions such as POTS, Dysautonomia, and fibromyalgia. Dr. Dos Santos discusses her approach to group and individual therapy, the importance of validating patients' experiences, and the impact of these conditions on adolescents and their families. The episode highlights a significant study, "You Look Perfectly Healthy to Me" on the quality of life for youth with POTS, stressing the need for more research, interdisciplinary collaboration, and advocacy. Dis Santos shares her insights on understanding the biopsychosocial framework of symptoms and offers hope and practical advice for those living with chronic illnesses.

00:00 Welcome Back to the Conversation with Dr. Lori Dosantos
00:23 Introduction to the Host and the Podcast's Mission
00:48 Resuming the Conversation: Group Therapy and State Reciprocity
03:09 Deep Dive into POTS: Understanding Through Research and Patient Stories
10:14 Collaborative Care: The Power of Interdisciplinary Teams
13:31 The Genetic and Familial Connections of Chronic Conditions
24:54 The Role of Therapy in Managing Chronic Illness
26:24 Closing Thoughts and How to Reach Out for Support

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Support the show

When I started this podcast—and the book that came before it—I had my patients in mind. Office visits are short, but understanding complex, often misunderstood conditions like fibromyalgia takes time. That’s why I created this space: to offer education, validation, and hope. If you’ve been told fibromyalgia “isn’t real” or that it’s “all in your head,” know this—I see you. I believe you. You’re not alone. This podcast aims to affirm your experience and explain the science behind it. Whether you live with fibromyalgia, care for someone who does, or are a healthcare professional looking to better support patients, you’ll find trusted, evidence-based insights here, drawn from my 28+ years as an MD.


Please remember to talk with your doctor about your symptoms and care. This content doesn’t replace personal medical advice.*





...
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Ep 108 Past Meets Present: How Neurasthenia Illnesses Inform Contemporary Medicine Part 4
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