Episode 104 Marfan Syndrome with Dr. Amanda Lynn Hoffman

In today’s episode, we have the honor of hosting a truly remarkable guest, Dr. Amanda Lynn Hoffman. As the first Naturopathic physician with Marfan syndrome to specialize in this field, Dr. Amanda Lynn offers invaluable insights for both individuals living with Marfan's Syndrome and their caregivers. Her groundbreaking work in Naturopathic medicine and her personal journey with Marfan’s make her an extraordinary source of wisdom and inspiration.

In this episode, we dive deep into the world of Marfan's Syndrome, exploring key questions such as:

1. **The Life of a Person Living with Marfan Syndrome** - Discover what daily life looks like for those affected by this condition.

2. **Biological Drivers of Marfan's** - Understand the genetic and biological underpinnings of the syndrome.

3. **General Symptoms and Findings** - Learn about the common signs and symptoms that characterize Marfan’s.

4. **Cardiovascular Sequelae of Marfan's** - Explore the cardiovascular complications associated with the disorder.

5. **Surgical Interventions** - Gain insights into how surgery is performed and its role in managing Marfan’s.

6. **The Journey of a Marfan's Patient** - Follow the emotional and physical journey of patients living with Marfan’s.

7. **Natural Approaches to Supporting Marfan's Patients** - Discover holistic and naturopathic methods to support those with Marfan’s.

8. **Addressing TGF-Beta Dysregulation** - Examine how this critical pathway is implicated in Marfan’s and ways to address it.

9. **Quality of Life Issues** - Identify the unique challenges faced by Marfan’s patients and strategies for improving their quality of life.

This episode holds special significance as it was recorded just before Dr. Amanda Lynn underwent her David-5 heart surgery. We discuss her thoughts and experiences leading up to this major procedure, and I'm thrilled to share that she is now on the road to recovery..

About Dr. Amanda Lynn Hoffman

Licensed for 13 years as a massage therapist and herbalist Dr. Amanda Lynn has a unique view of the body. She brings in the physical, emotional with the physiological. Dr. Hoffman has expanded her studies across the United States; focusing on Clinical Sports Medicine and Master’s work in Expressive Arts Therapy in Cambridge, MA., Spa treatments in Lake Tahoe, Energy-Spiritual work in Hawaii, and Herbal apprenticeships in Eugene, OR. before ever signing up for Med school. Dr. Amanda’s treatments are mind, body and spiritually holistic.

As a Family Medicine Physician her work has gone to a new level of finding the cause and correcting the body’s blocks to allow and support the body’s ability to heal itself. Special training and education has taken her interests in the endocrine system specifically, thyroid, adrenals and hormones to become one of her expertise areas.

Marfan’s syndrome and “loose connective tissue/joints” is her original focus being published for her Naturopathic focus on increasing the integrity of the musculoskeletal and cardiovascular/pulmonary systems.

Born and raised in rural Oregon, Dr. Amanda Lynn cares about the wellness of her community and is excited to bring Naturopathic medicine to a larger stage.

Dr. Amanda Lynn’s thesis was on the Naturopathic treatments for connective tissue health and integrity from the musculoskeletal system to the cardiovascular system, specifically the heart. As a patient herself with a rare genetic disorder Dr. Amanda Lynn is the first Naturopath with Marfan’s syndrome to focus on healing pain and strengthening the cardiovascular/muscular system.

Special Links:

• Download "Loose Women_ is a support guide for all things “not talked” about natural therapies for Marfan Syndrome, Vascular Ehlers Danlos, Ehlers Danlos Syndrome, and Hypermobility Spectrum Disorders.
• Donation when we hit 300 listens in the first 30 days or [commongroundscollective.com])  Honoring the fire victims of Maui 2023.

Social Links:

https://www.onethingpod.com/guests/amandalynn-hoffman/