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The Rare and Resilient - ONE in 5000 Podcast

The Rare and Resilient - ONE in 5000 Podcast

Health & Fitness:Medicine

Episode 20 - Interview with Cassandra - Mother of 22 mth old son Malachi from USA, who was born with IA/ARM and Down Syndrome

Episode 20 - Interview with Cassandra - Mother of 22 mth old son Malachi from USA, who was born with IA/ARM and Down Syndrome

2021-10-24
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For Episode 20, to celebrate Down Syndrome Awareness month we are joined by Cassandra from Florida USA who shares the story of her beautiful son 22 month old Malachi who was born with "Imperforate Anus/Anorectal Malformation without fistula" and Down Syndrome (Trisomy 21). The classification of "IA/ARM without fistula" is a unique characteristic which is found in only 5% of Anorectal Malformations cases with 95% of children also diagnosed with Down Syndrome. Cassandra gives us an incredible insight into the continual challenges Malachi has endured and the passion she has for advocating for a very special community. I know Malachi's story will touch the hearts of us all. 

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More Episodes

Episode 31 - Interview with Dr Alberto Pena - Pioneer of PSARP surgery
2022-04-26 386
Episode 30 - Interview with Christina from Washington State USA, mother of 3 year old Eliza who was born with IA/ARM
2022-04-18 122
Episode 29 - Interview with Dr Andrea Bischoff, Director of International Center for Colorectal & Urological Care - Children’s Hospital Colorado, USA
2022-03-12 301
Episode 28 - Interview with Daria from Spain, Mother of 5 year old Daniel born with IA/ARM & Tracheo-Esophageal fistula,
2022-03-04 96
Episode 27, Interview with Emma, a 47 year old IA/ARM Adult from Queensland, Australia
2022-02-26 161
Episode 26 - Interview with Angel, Mother of 5 year old son Wolf from Australia who was born withIA/ARM
2022-02-21 130
Episode 25 - Interview with Carlo, a 37 year old IA/ARM Adult from New York, USA
2022-02-11 171
Episode 24 - Interview with Billie - Mother of 14 month old Jimmy from England who was born with IA/ARM
2022-02-02 440
Episode 23 (Part 2) Interview with Dr Christina Low Kapalu, Pediatric Psychologist, Children’s Mercy Hospital Kansas City, USA.
2021-12-29 115
Episode 23 (Part 1) - Interview with Dr Christina Low Kapalu - Pediatric Psychologist - Children‘s Mercy Hospital, Kansas City, USA
2021-12-19 227
Episode 22 - Interview with Denise - Mother of 19 year old son Wilson from USA who was born with IA/ARM
2021-11-30 129
Episode 21 - Interview with Suzie - Mother of 10 year old son Kaden from USA who was born with IA/ARM.
2021-11-09 109
Episode 19 - Interview with Dr Marc Levitt, Chief of Colorectal & Pelvic Reconstruction, Children‘s National Hospital, Washington DC USA
2021-10-11 394
Episode 18 - Interview with Assoc. Prof. Rebecca Rentea - Pediatric Colorectal Surgeon - Children‘s Mercy Hospital Kansas City USA
2021-09-27 181
Episode 17 - Interview with Dr Bruno Martinez, Pediatric Colorectal Surgeon - Moctezuma Children‘s Hospital, Mexico City, Mexico
2021-09-12 135
Episode 16 - Interview with Jack from Canada, 11 years old born with IA/ARM and his mother Mary
2021-09-02 159
Episode 15 - Interview with Katrina, 63 years old from England who was born with IA/ARM (Cloaca).
2021-08-20 191
Episode 14 - Interview with Mark, father of a 3 1/2 year son from USA born with IA/ARM, Neurogenic Bladder & Single Kidney.
2021-08-16 172
Episode 13 - Interview with Laura & Ryan, parents of 9 year old Peyton from USA who was born with IA/ARM (Cloaca)
2021-08-06 181
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