113 - Families Moving Forward Connect App - A Conversation with Dr. Christie Petrenko
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 113 welcomes back Dr. Christie Petrenko (Episode 32 Guest), who discusses the final stage of the resourceful, innovative and accessible "Families Moving Forward Connect App". Christie Petrenko, Ph.D, is a clinical psychologist and researcher who has been conducting research with individuals with FASD since 2003. She completed her graduate training with Edward Riley and Sarah Mattson in San Diego, CA in 2009 and she is currently a faculty member at Mt. Hope Family Center at the University of Rochester. Her research focuses on developing and evaluating interventions for people with FASD, including the use of mobile health technology to increase access to care. She has experience in training teams of providers, both regionally and internationally, in FASD Diagnoses. Dr. Petrenko also runs a multidisciplinary FASD clinic - providing diagnostic, intervention and family support services in Rochester, NY.
In this exciting episode, Dr. Petrenko discusses the "Families Moving Forward Connect App" and the following: the app's history, the need and goals for this app, how it's in the final testing portion of app development, how this app can be a HUGE resource for the FASD community, components of FASD Informed Care, barriers to diagnoses / care, CRITERIA to be in this final part of the Families Moving Forward app development and how the app gives her hope for the FASD Community.
Components of FASD Informed Care: Reframing, Accommodations, Brainstorming, Building Skills and HOPE!
Criteria to be in this last phase of (and to have access to) the Families Moving Forward App: Families of children, between the ages of 3-12 years old, who have an FASD or Prenatal Alcohol Exposure, Able to use the app on an iPhone or iPad Apple Device, Families must live in the United States
*If you are interested in participating in this INNOVATIVE and RESOURCEFUL app final stage, please visit the following website *
FAMILIES MOVING FORWARD CONNECT APP
https://www.urmc.rochester.edu/fasd-research.aspx
OTHER EPISODE RESOURCES
Mt. Hope Family Center at University of Rochester -
Facebook - https://www.facebook.com/mthopefamilycenter
Twitter - https://twitter.com/MtHopeFamilyCtr
The Families Moving Forward Program discussed by Dr. Petrenko -
https://familiesmovingforwardprogram.org/
CiFASD -
https://cifasd.org/
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
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