Welcome to 2022! Our first interview of the year is with Julie Nys, Ph.D.; who tells us why she is working to improve the lives of people with epilepsy - through developing the seizure detection device: EpiCare@Home. For many, this shall play a part in diagnoses, effective treatments, patient and family, empowerment, and much, much more.
Topics Julie and I chat about include:
• Explaining the device
• Product development
• My experience in testing the device
• Brain monitoring and insights
• Personal evolution of epilepsy
• How the EpiCare@Home compares to a "regular" EEG (quality, price, privacy)
• Extending the monitoring period outside of the hospital
• Brain activity patterns in the home environment
• Reductions in cost to health providers
• Speeding up precision medicine
• Data quality
• Patient involvement
• Empowering users - adults, children, and carers
• Working with (and not against) other software and device companies, neurologists, epilepsy care centres, etc.
• Examples, and benefits of use
• The shift from research to clinical practice
• Improving communications between patient and clinicians
**TERMS USED - FIND IN THE GLOSSARY: https://www.epilepsysparks.com/glossary**
EEG, video telemetry, ambulatory EEG, neurophysiologists, ASMs, comorbidities, data quality, precision medicine
People mentioned: Prof. Rohit Shankar
**CONNECT WITH TORIE**
• Website: https://www.torierobinson.com
• Twitter: https://twitter.com/torierobinson10
• LinkedIn: https://www.linkedin.com/torierobinson
• Facebook: https://www.facebook.com/TorieRobinsonSpeaker
**HIRE TORIE AS A SPEAKER ON EPILEPSY, MENTAL HEALTH, DISABILITY, & DIVERSITY**
https://www.torierobinson.com/contact
**CHECK OUT JULIE, BYTEFLIES & Epicare@Home**
• LinkedIn: https://www.linkedin.com/in/julie-nys-phd-884b1876
• Twitter: https://twitter.com/JNys86
• epicare@home: https://www.epicareathome.com
• Byteflies: https://www.byteflies.com/our-team
**CHECK OUT THE VIDEO WITH JULIE**
https://youtu.be/0BgrQ_sHJDU
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