A day in the life of SRF: Greece, Ukraine, Rarebase, Zempleni #S10e72

0. SUPPORT OUR PATIENT IN UKRAINE

Fundraiser: https://secure.givelively.org/donate/syngap-research-fund-incorporated/help-syngap-family-escape-ukraine/ 

Tweet: https://twitter.com/JMGraglia/status/1563362473327005698 

 

1. LONGBOARD PHARMA & RAREBASE

Watch #S10e71 https://www.youtube.com/watch?v=iPoOjKBwPfY

 

2. SEIZURE TRACKER

Watch #S10e70 https://youtu.be/g6R9ejJnYbw
More detail in Webinar64 https://www.syngapresearchfund.org/webinars/64-syngap-study-seizure-tracker 

 

3. WEBINARS

PRAXIS & INVITAE - SEPT 8th at 10 PT https://pages.questexinfo.com/invitaereg09082022/?pk=Invitae 

BEN PROSSER - SEPT 29th at 9 PT https://www.syngapresearchfund.org/webinars/targeting-alternative-splicing-of-syngap1-using-antisense-oligonucleotides 

 

4. COME TO THE CONFERENCE 

Register: https://Syngap.Fund/Treat

Book a room: Link on the registration page.

 

5. LOTS OF EVENTS TOO!

• 2 Weeks: September 12-14 in San Diego https://globalgenes.org/event/rare-patient-advocacy-summit/ 
• 5 Weeks: October 8 in NJ - Caren Leib Gala https://www.syngapresearchfund.org/get-involved/fundraising/caren-leib-gala
• 5 Weeks: October 8 in SC - Scramble for SYNGAP https://www.syngapresearchfund.org/get-involved/fundraising/scramble-for-syngap 
• 10 Weeks: November 12 in GA - Sparks of Hope Gala https://syngap.fund/soiree
• 13 Weeks: December 1 & 2 in TN - Syngap Science Meeting - https://syngap.fund/treat

 

This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here https://www.syngapresearchfund.org/syngap10-podcast 

Apple podcasts: https://syngap.fund/10a

 

Episode 72 of #Syngap10 - August 27, 2022 

#SalvaUkrani #helpneeded #Stoke #Acadia #CIITIZEN #INVITAE #SEIZURETRACKER #CareAboutRare #Syngap #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GlobalCollaboration