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Sarc Fighter: Living with Sarcoidosis and other rare diseases

Sarc Fighter: Living with Sarcoidosis and other rare diseases

Health & Fitness:Medicine

Episode 70 | Laura Ward thought she had cancer... but it was sarcoidosis.

Episode 70 | Laura Ward thought she had cancer... but it was sarcoidosis.

2022-09-12
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Sarc Fighter Laura Ward has been fighting sarcoidosis for three years.  Her first inclination that something was wrong happened at Yankee stadium, when she had trouble walking up to her seat.  Initial tests showed she had lymphoma.  But upon further review, it was pulmonary sarcoidosis.  That led to issues with prednisone and other life challenges that she shares in Episode 70 of the FSR Sarc Fighter podcast.

Show Notes

#Makeitvisible https://www.stopsarcoidosis.org/fsr-updates-and-publications/

Kinevant

  • www.kinevant.com
  • www.sarcoidosistrial.com
  • ClinicalTrials.gov listing for RESOLVE-Lung: https://clinicaltrials.gov/ct2/show/NCT05314517
  • ClinicalTrials.gov listing for RESOLVE-Heart: https://clinicaltrials.gov/ct2/show/NCT05351554

The New FSR Initiative

https://www.stopsarcoidosis.org/foundation-for-sarcoidosis-research-launches-groundbreaking-global-rare-disease-initiative/

Nourish by Lindsey: https://www.nourishbylindsey.com/

Dr. Jinny Tavee's book, The Last Day of Suffering: https://www.amazon.com/Last-Day-Suffering-Health-Happiness/dp/0615542751

Yale University and sarcoidosis skin treatment | Dr. William Damsky: https://news.yale.edu/2018/12/26/yale-experts-treat-severe-disfiguring-sarcoidosis-novel-therapy

Stanford University Clinical trial | Dr. Mathew Baker: https://med.stanford.edu/sarcoidosis/clinical-trial.html

MORE FROM JOHN

Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/

Watch the Prednisone Town Hall on YouTube https://youtu.be/dNwbcBIyQhE

More on aTyr Pharma: https://www.atyrpharma.com/

Do you like the official song for the Sarc Fighter podcast?  It's also an FSR fundraiser!

If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account.  (Kick In to Stop Sarcoidosis)  100-percent of the money goes to the Foundation.  https://stopsarcoidosis.rallybound.org/MarkSteier

The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/

Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR  https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E

My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/

email me  carlinagency@gmail.com

 

 

 

 

view more

More Episodes

Episode 89 | What does your DNA have to do with Sarcoidosis? An FSR Town Hall.
2023-06-05
Episode 88 | MaryKay Reidenbach has been fighting the fight for 28 years.
2023-05-22
Episode 87 | Writer Rebeccca Stanfel on the Pain from Sarcoidosis and Legitimate Need for Opioids.
2023-05-08
Episode 86 | Betsy Bennett beat breast cancer - but Sarcoidosis arrived shortly after.
2023-04-24
Episode 85 | An FSR Town Hall - Getting closer to the first ever drug designed to fight Sarcoidosis
2023-04-10
Episode 84 | A patient story to go along with Sarcoidosis Awareness month and how FSR is leading the fight.
2023-04-03
Episode 83 | Tony Haskel thought his heart was healthy. Then came Sarcoidosis.
2023-03-27
Episode 82 | Sam Wassel’s unexplained abdominal pain was sarcoidosis - plus Cycle4Sarc goes public
2023-03-13
Bonus Episode | FSR Town Hall - Uncovering the Future of Sarcoidosis Treatment and Clinical Trials
2023-03-06
Episode 81 | Wade Tomlinson tries to walk away from sarcoidosis.
2023-02-20
Episode 80 | John riffs on sarcoidosis clinical trial opportunities and ... Disney
2023-02-06
Episode 79a | Royce Robertson is Fighting Sarcoidosis from the seat of his bike!
2023-01-23
Episode 79 | Sarc Fighter Royce Robertson bares his sole while looking for a way to help fight Sarcoidosis
2023-01-16
Episode 78 | Dr. John Belperio at UCLA has done a deep dive into the state of Sarcoidosis.
2023-01-02
Episode 77 | Covid Vaccines and Sarcoidosis: Surprising new research from the University of Illinois Chicago
2022-12-19
Episode 76 | Leeanne West is a scientist who discovered Sarcoidosis in her own life.
2022-12-05
Episode 75 | FSR Leaders Dr. Louise Perkins and CEO Mary McGowan on all the current progress.
2022-11-21
Episode 74 | A Doctor and Two Sarc Fighters Urge Black Americans to Join Clinical Trials
2022-11-07
Episode 73 | FSR is looking for a few good volunteers. Maybe you.
2022-10-24
Episode 72 | Sarc Fighter Regina Gordon shares her battle.
2022-10-19
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