Episode # 37 Rare Look in a Rare Disease- Hermansky Pudlak Syndrome

Featured Guest: Donna Appell and Carman Camacho 

This podcast we meet Donna Appell Executive Director and Carman Camacho MA, LSW works as a clinical counselor for the Hermansky-Pudlak Syndrome Network. We learn about this rare disease and how these two women are fighting for a cure.

 

Link to Their Website: https://www.hpsnetwork.org/