Life with NF (neurofibromatosis and all types of schwannomatosis) can mean contending with things like brain tumors, café au lait spots, neurofibromas, learning difficulties, loss of hearing, excruciating pain, successful surgeries, failed clinical trials, physical scars, emotional wounds, and tremendous anxiety, never knowing what’s around the corner. We are committed to making NF visible to bring to light the visible and invisible ways NF makes itself palpable in a person’s life and why it’s critical to invest in research that will make a difference.
Originally published on globalheroes.com. Learn more at ctf.org
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