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The Grace, Grief and Grit Podcast

The Grace, Grief and Grit Podcast

Education

Siblings of EB - The Faces and Hearts of True Support

Siblings of EB - The Faces and Hearts of True Support

2024-01-18
Download

A few episodes back we had a chance to sit down and chat with Hodges R. Caldwell Jr. - one of the most dynamic, inspiring individuals you'll ever get to know. Hodges was born in 1979 in Virginia and in his words, "looked pretty normal as a baby". At six-months old, Hodges developed a blister on his right side. Even though doctors told Hodges' mom that it would go away, it never did. It actually got bigger until it finally burst giving the appearance that he had been burned. 

It was finally at a hospital in Bethesda, Maryland that Hodges was diagnosed with EB.

On this episode we are thrilled to sit down with Hodges' sister Sarah Groome and hear her journey of support and love. 

Learn more about the voices in this episode:

Hodges Coldwell Jr. - Personal Journey

EB LifeStyle Inc - Learn how you can help the EB Community

Heroes for Hallie Grace, Inc.

Proudly hosted and produced by Dee Daniels Media

view more

More Episodes

Unbearable Burden: Navigating Grief in Unimaginable Circumstances with Krista Isaacson
2025-04-02 23
Navigating Life with Grace: Ariana Covarrubias on EB, Resilience, and Authenticity
2025-03-20 18
Season 3 Kickoff: Sippin' on Grace, Grit, and Community
2025-03-13 17
Finding Strength in Vulnerability: A Father's Journey Through Grief
2025-02-06 36
A Night of Stars and Strength: The LA "Rock4EB" Experience
2025-01-30 19
From Awareness to Acceptance: The Power of Inclusion with Author Dennis Vanasse
2025-01-09 22
Uniting for Change: A Conversation & Call-to-Action on Giving Tuesday
2024-12-03 13
Integrative Health Therapy with Desiree Sparrow: Mindfulness and Self-Care
2024-11-21 59
Navigating Hope: Conversations with EBRP's CEO Michael Hund
2024-11-08 36
Connections: Capturing the Story with Lyle Dillie
2024-09-19 26
Goals, Dreams, and the Power of Connection: We had another BALL!
2024-09-05 15
Grief: Exploring the Communication of Emotions with Dr. Nicholas Christakis
2024-07-18 27
THIS is what a Support Team looks like! Life Grows Around the Grief: Parents Holding Space for Parents
2024-04-29 55
Looking Back and Looking Foward with Epidermolysis Bullosa | ft. Dr. Peter Marinkovich
2024-03-28 85
A New Season: Lasting Legacy, Inspiring Impact!
2024-03-26 20
Kids Grief Support, ft. Child Life Specialist Jessica Correnti
2024-02-22 40
Savannah Ghost Pirates - EB Awareness Night is COMING!!
2024-02-12 24
Meeting the Heroes Building Therapies for Genetic Diseases
2024-01-11 36
Perfection of Imperfection | ft. Hodges R. Caldwell, Jr.
2024-01-04 42
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