In this episode, I am joined by my amazing husband, Maurice Mathis, as we discuss the ins and outs of the path leading to our NICU journey with our miracle twins, Gordyn and Winston.
Born at 30 weeks, 6 days, Gordyn and Winston spent 6 and 13 weeks respectively in the NICU. Though they were nearly 31 weekers, Winston was born with a rare condition called Intrauterine Growth Restriction (IUGR), which is characterized by extremely low birth weight for gestational age. So, while he was born at 30 weeks, he as measuring at the approximate size of a 24 or 25 weeker. Winston was 1 lb, 8 oz at birth, as compared to his twin sister, who was born at 2 lbs, 15 oz. In some cases, babies with IUGR have are born with down syndrome, various chromosomal issues, or even stillborn, because they have their umbilical cord has not made way for enough bloodflow, oxygen, and nutrients throughout the pregnancy.
The journey to their birth after we discovered the growth restriction (at 25 weeks) was challenging, but we were able to cling tightly to the strength and hope of Jesus during that time. Our desire is to provide supernatural hope to families who, like us, know that they will face a NICU journey or those families that are currently journeying through the difficult roller coaster of the NICU.
This weekend, on September 20th, in honor of our final NICU graduation, we are launching Notes of Hope from 6.27, a greeting card line designed to assist loved ones of those currently in the NICU in infusing hope into the lives of their loved ones currently facing the battle of the NICU.
Notes of Hope from 6.27 is curated to be a weekly infusion of hope. The cards are created in specialty small batches and are designed to help families through their NICU journeys. The NICU can often be an isolating and lonely experience, and family and friends often don't know what to say or do to help their loved ones. Based on our experience, we want to send messages of love, strength and hope to families that are currently facing the most difficult challenge of their lives, known as the NICU.
Our reassurance in providing this hope lies in these words shared in II Corinthians 1:3-4, "All praise to God, the Father of our Lord Jesus Christ. God is our merciful Father and the source of all comfort. He comforts us in all our troubles so that we can comfort others. When they are troubled, we will be able to give them the same comfort God has given us."
Our mission is simple, to comfort other who are in trouble with the same comfort and hope that we have received!
Thank you for journeying with us and for allowing us to share our story, and that you for sharing this hope with others!
Don't forget to follow us at The Jesus Brand Online and on IG @theJesusbrandonline
#nicu #nicuawareness #preemie #preemieawareness #iugr #iugrawareness #podcast #blackpodcasts #christianpodcasts
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