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Sarc Fighter: Living with Sarcoidosis and other rare diseases

Sarc Fighter: Living with Sarcoidosis and other rare diseases

Health & Fitness:Medicine

Episode 123 | Stephanie Mizell is helping you beat Sarcoidosis while she struggles with her own sarc symptoms

Episode 123 | Stephanie Mizell is helping you beat Sarcoidosis while she struggles with her own sarc symptoms

2024-10-07
Download

Stephanie Mizell has good days and bad days.  And she doesn't know what it will be until she wakes up and breathes.  Such is the life of a young mother with sarcoidosis.  Shortly after her diagnosis, Stephanie learned that FSR needed a person with her marketing talents.  She applied for the job -- and now she is helping all of us by spreading the word about sarcoidosis with her professionalism and skills.  Listen in as she tells how she learned of the job with the Foundation, and how she now uses all the tricks of the trade to make sure our social media presence is felt by as many people as possible.

 

Show notes

Join the Externally-Led Patient Focused Discussion before the FDA:  https://www.stopsarcoidosis.org/events/fsr-externally-led-patient-focused-drug-development-meeting/

Sign up for FSR's 100-Mile Challenge: https://givp.nl/register/MGEluUUb 

Support Mark Steier's wife, Caeleigh:  https://stopsarcoidosis.rallybound.org/2024-team-rally-for-sarc/Team/View/193889/Team-Sarc-Mark

 

MORE FROM JOHN:

Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/

Do you like the official song for the Sarc Fighter podcast?  It's also an FSR fundraiser! If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account.  (Kick In to Stop Sarcoidosis)  100-percent of the money goes to the Foundation.  https://stopsarcoidosis.rallybound.org/MarkSteier

The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/

Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR  https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E

My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/

email me  carlinagency@gmail.com

 

 

 

 

 

 

 

 

 

view more

More Episodes

Episode 137 | Dr. Brandon Moss of the Cleveland Clinic talks neuro sarcoidosis
2025-04-28
Episode 136 | A big Announcement for John and Sarah Bishop joins from halfway around the world to share her Sarcoidosis story.
2025-04-14
Bonus Episode | Leaning in on equity in Clinical Trials
2025-04-07
Episode 135 | April is Sarcoidosis Awareness Month!
2025-03-31
Episode 134 | Dr. Ravi Karra of Duke University discusses his research on Cardiac Sarcoidosis and its causes.
2025-03-17
Episode 133 | FSR funds new research and an email from New Zealand
2025-03-03
Episode 132 | Dr. Arthur Yee on the history of sarcoidosis and a call out to rheumatologists everywhere
2025-02-17
Episode 131| A well-designed and successfully conducted clinical trial with very clear negative results is the second-best outcome in drug development
2025-01-27
Episode 130 | New Year, New Life.
2025-01-13
Episode 129 | Karen Coleman is a dancer who had to slow her feet thanks to sarcoidosis
2024-12-30
Episode 128 | A year of major accomplishments - and how you can help the Foundation for Sarcoidosis Research
2024-12-16
Episode 127 | Mariza Löb Talks about her life with Cardiac Sarcoidosis
2024-12-02
Episode 126 | When is Cardiac Sarcoisosis at its worst and FMLA clearance for clinical trials
2024-11-19
Episode 125 | All about our session with the FDA as the Sarc community makes its case.
2024-11-04
Episode 124 | FSR CEO Mary McGowan on how we are taking the sarcoidosis message to the FDA
2024-10-21
Episode 122 | Lindsay Lawrence was a surfer until sarcoidosis pulled her under
2024-09-23
Episode 121 | Wade Tomlinson needed a lung transplant
2024-09-09
Episode 120 | Dr. Kamal Bharucha is a researcher who found himself a heartbeat away from real trouble
2024-08-26
Episode 119 | Jessica Soules deals with Neurosarcoidosis
2024-08-12
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