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PWS United

PWS United

Business:Non-Profit

Pulse 108: Prepare for Holidays, New Staff, Operation Holiday Cheer, & More

Pulse 108: Prepare for Holidays, New Staff, Operation Holiday Cheer, & More

2024-10-08
Download

The latest in PWSA news, research, fundraising, family support, advocacy, and more. Be sure to check out the links!

LINKS

Our Staff - Prader-Willi Syndrome Association | USA (pwsausa.org)

Halloween Fun for Everyone - Prader-Willi Syndrome Association | USA (pwsausa.org)

Celebrate Thanksgiving Safely - Prader-Willi Syndrome Association | USA (pwsausa.org)

Celebrate Holidays Safely - Prader-Willi Syndrome Association | USA (pwsausa.org)

Share Your Halloween Tips and Tricks for PWSA | USA's PWS United Podcast - Prader-Willi Syndrome Association | USA (pwsausa.org)

Hope for the Holidays - Prader-Willi Syndrome Association | USA (pwsausa.org)

Share Your Story - Prader-Willi Syndrome Association | USA (pwsausa.org)

Arizona Grand Resort & Spa - Reservations - Room Availability Search (synxis.com)

Home - 2025 United in Hope PWS Conference (cventevents.com)

2025 PWS Conference Mural Photo Submission - Prader-Willi Syndrome Association | USA (pwsausa.org)

Inaugural RMC Foundation Golf Outing: Jen Garzia Speech (youtube.com)

Dance Silly for Prader Willi T-Shirt - Prader-Willi Syndrome Association | USA (pwsausa.org)

Events from October 11 – June 24, 2025 – Prader-Willi Syndrome Association | USA (pwsausa.org)

New England Prader Willi Conference Tickets, Sat, Nov 2, 2024 at 8:30 AM | Eventbrite

The Many Factors of Independence - Prader-Willi Syndrome Association | USA (pwsausa.org)

Spreading Joy: Operation Holiday Cheer Returns to Support PWS Families in 2024 - Prader-Willi Syndrome Association | USA (pwsausa.org)

Ask Nurse Lynn: Bowel Movements and Picking - Prader-Willi Syndrome Association | USA (pwsausa.org)

TREND Webinar Registration - Zoom

Update on Phase 3 COMPASS PWS Study from Acadia - Prader-Willi Syndrome Association | USA (pwsausa.org)

Project Echo - Prader-Willi Syndrome Association | USA (pwsausa.org)

Prader-Willi Syndrome Association - YouTube

africke@pwsausa.org

 

Intro Music: https://www.bensound.com/; License certificate #2242442 

view more

More Episodes

Ep81 Pulse 141: Caregivers Day, Voices on Vykat, Board Member Spotlights
2026-02-24 52
Ep80: What's in Store for PWSA | USA in 2026?
2026-02-17 63
Ep79 Pulse 140: Residential Providers, Plunge for PWS, PRV Win, Feeding Tubes
2026-02-10 71
Ep78: Miriam Chernick: Educating the Community
2026-02-03 96
Ep77: Limits, Perspective, and Mental Wellness
2026-01-27 111
Ep76 Pulse 139: Art Share Launch, Social Media Use, Voices on VYKAT Testimonial
2026-01-21 116
Ep75: Global PWS Registry 2.0
2026-01-13 110
Ep74 Pulse138: DC Fly In Applications, Mental Wellness, Save the Dates for 2026
2026-01-06 107
Ep73: Stacy's End of Year Message
2025-12-30 67
Ep72 Pulse 137: End of Year Reflection, Holiday Traditions and Tips, Clinical Trial Wrap-Up
2025-12-23 64
Ep71: Christian Garzia: Humor, Fairness, and Protection
2025-12-16 93
Ep70 Pulse 136: In Memory of Fausta, Give Kids a Chance Act, HERO Study Expansion, PWS Relationships Study
2025-12-09 95
Ep69: Joe Gill: Inclusion, Purpose, and the Little Things
2025-12-02 144
Ep68 Pulse 135: Holiday Preparation, Prader Silly Recap, 2026 D.C. Fly-In, PWS and Diabetes, Research Spotlight
2025-11-25 125
Ep67: Broken Systems, Enduring Love, Single Caregivers Series
2025-11-18 132
Ep66 Pulse 134: Angel Drive Launch, Operation Holiday Cheer, Skin Picking, Self-Care, Gratitude
2025-11-11 93
Ep65: Grit, Grace, and Family, Single Caregivers Series
2025-11-04 123
Ep64: Henry McDonald: Dynamic Duo, Superhero
2025-10-28 141
Ep63: Nile Hope Workshop and Camp, Department of Education Layoffs, Prader Silly Live Auction
2025-10-21 90
Ep62: Teaching Emotional Regulation in Individuals with PWS: ABA Strategies for Lasting Success
2025-10-14 216
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