E71 - Supporting Parents of a Child with a Disability - The Hidden World of Women

In today’s episode Emma chats with, Teresa from Kiind. Teresa is the Peer Navigation Lead at Kiind. Her job is to provide a space for families of people with disabilities the space to take first steps in accessing support and knowing they’re not alone. Her lived experience in navigating the world of diagnosis as a family member of a disabled person allows her to better connect to the people she’s working with. No one has been in your shoes, but having support from professionals who have walked a similar path to you is so important to feeling heard and validated.

This episode covers:

• Post diagnosis grief
• Advice on ways you can access support as a family
• Feeling frustrated by the way society, treats disabled people and their families
• Reminding carers to care for themselves

As always Emma and Teresa go off on some tangents and winding thought trails. If you’re the parent or family member of a newly diagnosed person know that you’re not alone and this episode isn’t here to shame you for however you might be feeling right now. It’s ok to not be ok.

Some resources listed in the episode

Down Syndrome WA: https://www.downsyndrome.org.au/wa/

Heart kids: https://www.heartkids.org.au/

Siblings Australia: https://siblingsaustralia.org.au/

Relationships Australia: https://www.relationships.org.au/

Carers WA: https://www.carerswa.asn.au/

Carers WA Young Carers program: https://www.carerswa.asn.au/our-services/young-carers/

 

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