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CURE SYNGAP1 PODCAST aka SYNGAP10

CURE SYNGAP1 PODCAST aka SYNGAP10

Business:Non-Profit

Webinars, Warriors, Work, Caren subtitles & Sprint4Syngap - Episode 3 of #Syngap10 - March 29th, 2021

Webinars, Warriors, Work, Caren subtitles & Sprint4Syngap - Episode 3 of #Syngap10 - March 29th, 2021

2021-03-26
Download

Webinars: Jo, SRFCC1 and so many others are up our beautitful YouTube channel Syngap.Fund/YouTube for the old ones Syngap.Fund/Webinar for the new ones. Warriors: Do you read them?  Is your SynGAPian amoung them?  SynGAP.Fund/Warriors Work: Do you have time to help?  Know a filmaker.  Caren subtitles: we are working on them. Sprint4Syngap: we're uping the goal to $100k, we can do this.

view more

More Episodes

Support Clinical Trial Design for #SYNGAP1 via biobanks, EEGs and Fundraising. #S10e199
2026-02-17 54
All #SYNGAP1 Families need to take part in our Natural History Studies: ProMMiS & Citizen #S10e198
2026-02-06 80
Funding Priorities. Biorepository. Genetic Testing. How to move for a clinical trail! #S10e197 Monday, February 2, 2026 - Week 6
2026-02-02 68
Stoke Tx shows us that ASO Clinical Development is accelerating. #S10e196
2026-01-16 84
SYNGAP1 Related Disorder (SRD) Key Talking Points & why we need to use them. #S10e195
2026-01-11 82
Becky Quick launches CNBC Cures, Finding Your Voice & Key Talking Points for SRD! #S10e194
2026-01-09 99
Stockdale Paradox: Not getting out at Xmas, but we will win. #SynGAPCensus = 1,707. #S10e193
2026-01-02 84
AES ‘25 was incredible, Fundraising, PRV, Behaviors, Posters/Pubmed & Thank you. #S10e192
2025-12-20 85
New book by #SYNGAP1 mom for and about #GlassChild (Sibling of Special Needs) #S10e191
2025-12-01 96
AAV. Resources on cureSYNGAP1.org. Congrats to Ultragenyx & Novartis. Conf is in 5 days! #S10e190
2025-11-27 82
#CureSYNGAP1 Conf: 1 week! #GivingTuesday: 5 days. #ProMMiS. Mvmt & Sleep papers. #S10e189
2025-11-27 67
It’s time to UNLOCK THEIR TOMORROW - let’s raise funds. Also: CAMP4 and our name. #S10e188
2025-11-09 79
Clinical Research, AI Dx, #NL47, Survey, #Autism Press, 6 Days to Register for #SYNGAP1conf #S10e187
2025-10-25 79
#SyngapCenus 1,675 Teacher Handout CC/VNS Citizen Paper $CAMP starts GLP Tox CIRM funds S1 #S10e186
2025-10-03 94
F78.A1,the code for #SYNGAP1, turns 4, make sure we use it. #ICD10 for #RareDisease Update. #S10e185
2025-09-30 75
DSC - RDCRN - NCATS - NIH Press! #AAV in #Cell. SRF at CB. Scramble for SYNGAP1 next week! #S10e184
2025-09-26 75
You need a #CRID. SRF $1M to $CAMP noticed in Equity Research! #BeaconOfHope was great. #S10e183
2025-09-26 69
CURE SYNGAP1 joins biotech investors in CAMP4 Tx’s $100M Raise for ASO Program $CAMP #S10e182
2025-09-10 112
Why & How Do Patient Advocacy Groups Matter? Party Friday! #SYNGAP1Conf soon! #Elopement #S10e181
2025-09-08 67
#IEP: Syngapians don’t like the heat 🌡️ #BeaconOfHope #IEC2025 #CitizenHealth #DSC #CFC #S10e180
2025-08-29 92
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