A personal and informative interview/podcast with Kam Redlawsk, GNEM patient and advocate who sheds light on the ableism in our society, ways to break down barriers, and reduce feelings of shame and isolation for people who are disabled.
About NDF: Our mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach, and funding critical research focused on treatments and a cure.
To learn more about GNE Myopathy visit: https://www.CureGNEM.org
NDF Talks: "Getting To Know Your Genes" with genetic counselor Estie Rose
NDF Talks: Planning The Future With Dr. Shahin Ghadir & NDF Emotional Wellness Director Carol Gelbard, LSCW
NDF Talks: The Problems With Ableism In Our Culture
NDF Talks with: Carol Gelbard, LCSW about Promoting and Supporting Wellness in 2021
NDF Talks with: Mother/Caregiver of GNE Myopathy patients, Antionette
NDF Talks with: CEO Lale Welsh Discusses the journey to gene therapy for GNE Myopathy with NDF Board Co-Chair Ralph Loren
NDF Talks with: GNE Myopathy Patient, Sabeen
NDF Talks with Carol Gelbard, LCSW about stress management
NDF Talks with: GNE Myopathy Patient, Maya
NDF Talks with: GNE Myopathy Patient, Amy
NDF Talks with GNE Myopathy Patient, Tara
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