"I'm so flabbergasted by GNEM in a good way in a really really good way because it has allowed me to become more of my true self" - Tara
About NDF: Our mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach, and funding critical research focused on treatments and a cure.
To learn more about GNE Myopathy visit: https://www.CureGNEM.org
NDF Talks: "Getting To Know Your Genes" with genetic counselor Estie Rose
NDF Talks: Planning The Future With Dr. Shahin Ghadir & NDF Emotional Wellness Director Carol Gelbard, LSCW
NDF Talks: Breaking the Taboo of Disability
NDF Talks: The Problems With Ableism In Our Culture
NDF Talks with: Carol Gelbard, LCSW about Promoting and Supporting Wellness in 2021
NDF Talks with: Mother/Caregiver of GNE Myopathy patients, Antionette
NDF Talks with: CEO Lale Welsh Discusses the journey to gene therapy for GNE Myopathy with NDF Board Co-Chair Ralph Loren
NDF Talks with: GNE Myopathy Patient, Sabeen
NDF Talks with Carol Gelbard, LCSW about stress management
NDF Talks with: GNE Myopathy Patient, Maya
NDF Talks with: GNE Myopathy Patient, Amy
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