We initially invited Lori Ross on the podcast to discuss the PEERS (Peers Examining Experiences in Research) Study - a 2 yr federally funded research project looking at the experiences of peer researchers with lived experience in communities that face structural oppression in Canada, including mental health service users, people who use drugs, trans and non-binary communities, and racialized communities. Not only was the project team studying peer researchers, but they employed peer researchers (as research assistants) as well.
In our conversation, we discussed this research project, the findings of which are still to be written up. However, the conversation also revealed that the research team was concurrently studying what they saw as failures in the study while they were conducting the research, and that they plan to write up those reflections as well.
We're excited to bring you this conversation with Lori Ross, the principal investigator, who shares with us some of the ins and outs of studying a process while simultaneously doing the work... and some of the project team's insights into why their participatory research project experienced failures.
Added to the experiential piece is their theoretical framing, which is sure to shed light on why participatory research conducted in the context of a large institution may indeed be "doomed to fail" when it comes to power sharing and other social justice aims.
[download transcript]
Guests:
Mentioned in this episode:
Caregiving and Work
”How did we do?” : A debrief on the role of Lived Experience Advisors in a healthcare research project
Spring Update 2023: Checking in with Jen and Em
Beyond Mandates: The Essential Input of Residents in Long-term Care Policy (Health Policy Series)
Critical Reflections on Public Engagement (Health Policy Series)
Transformative Public Engagement: Pitfalls, Possibilities and Promise - keynote by Dr. Jamila Michener (Health Policy Series)
Understanding Legitimacy in Public and Patient Engagement, with Katherine Boothe (Health Policy Series)
Deliberation, Democracy and Public Engagement: A Conversation with Kim McGrail (Health Policy Series
The Business and Politics of Engagement, with John Perenack of StrategyCorp (Health Policy Series)
Black Communities, Medical Mistrust and COVID Response, with Alpha Abebe and Rhonda C. George (Health Policy Series)
”Flipping the script” on narratives about Black communities and engagement, with Alpha Abebe and Rhonda C. George (Health Policy Series)
Health Policy Series Kick-off!: A retrospective look at public engagement, with Julia Abelson
Onwards and upwards: Jen and Emily check in
Season 3 Finale: Patient Partner Reflections, brought to you by OSSU
Moral Distress in Engagement Professionals, with Mark Weir
Engagement in Context: Reflections from Jenn Broad and Paula Tookey of the South Riverdale Community Health Centre
We‘re looking for patient partner stories and experiences!
Interview Extra: Advocacy and Health Equity, feat. Biba Tinga of the Sickle Cell Disease Association of Canada
Equity, Diversity, and Patient Engagement - with Dr. Nav Persaud
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