What makes an engagement process legitimate? How do technical experts feel about engagement, and how have their ideas of legitimacy changed over time? These are just some of the questions we explore with our guest, Katherine (Katie) Boothe, Associate Professor in the Political Science Department at McMaster University.
A recent paper of Katie's (Redefining Legitimacy in Canadian Drug Assessment Policy? Comparing Ideas Over Time) seeks to understand how and when people's ideas of legitimacy change when lay members are added to otherwise 'expert only' committees. In this case, the context is Canadian drug assessment advisory committees, where a group of technical experts and lay members help to determine what pharmaceutical drugs should be covered by public drug insurance policies.
Join us for this fascinating conversation exploring how public and patient engagement challenges pre-existing standards of what constitutes "good" scientific evidence, and how (unarticulated) differing rationales and goals for engagement can lead to frustration and disappointment.
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This series is supported by the Public Engagement in Health Policy project, which promotes research, critical reflection and dialogue about engagement issues that have a health and health policy focus. Learn more about this Future of Canada project at engagementinhealthpolicy.ca
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Guest links:
Mentioned in this episode:
Caregiving and Work
”How did we do?” : A debrief on the role of Lived Experience Advisors in a healthcare research project
Spring Update 2023: Checking in with Jen and Em
Beyond Mandates: The Essential Input of Residents in Long-term Care Policy (Health Policy Series)
Critical Reflections on Public Engagement (Health Policy Series)
Transformative Public Engagement: Pitfalls, Possibilities and Promise - keynote by Dr. Jamila Michener (Health Policy Series)
Deliberation, Democracy and Public Engagement: A Conversation with Kim McGrail (Health Policy Series
The Business and Politics of Engagement, with John Perenack of StrategyCorp (Health Policy Series)
Black Communities, Medical Mistrust and COVID Response, with Alpha Abebe and Rhonda C. George (Health Policy Series)
”Flipping the script” on narratives about Black communities and engagement, with Alpha Abebe and Rhonda C. George (Health Policy Series)
Health Policy Series Kick-off!: A retrospective look at public engagement, with Julia Abelson
Onwards and upwards: Jen and Emily check in
Season 3 Finale: Patient Partner Reflections, brought to you by OSSU
Moral Distress in Engagement Professionals, with Mark Weir
Engagement in Context: Reflections from Jenn Broad and Paula Tookey of the South Riverdale Community Health Centre
Discussing Failures in Participatory Research, with Lori Ross
We‘re looking for patient partner stories and experiences!
Interview Extra: Advocacy and Health Equity, feat. Biba Tinga of the Sickle Cell Disease Association of Canada
Equity, Diversity, and Patient Engagement - with Dr. Nav Persaud
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