The CFRI CF Community Voices Podcast
Health & Fitness
Lucy Barnes, Matthew DeFina, and Carl Robinson, three adults with CF who are also parents, share their individual paths to parenthood. Moderated by Mary Helmers, the discussion explores panelists’ experiences with reproductive health discussions with their CF care providers; their partners’ key roles; finding balance with parenting, working and managing CF; the impact of pregnancy and/or parenthood upon health maintenance; and addressing psychosocial care needs. This presentation was part of CFRI's 36th National CF Education Conference.
CFRI's 36th National CF Education Conference was sponsored by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, AbbVie, Genentech, and the Boomer Esiason Foundation.
Unleashed Stories: CF Pet Perspectives (Video)
Unleashed Stories: CF Pet Perspectives (Audio)
Colon Cancer and CF: Panel (Video)
Colon Cancer and CF: Panel (Audio)
Recursos de asistencia a paciente
Cancer de Colon y Fibrosis Quistica
Diversity, Equity and Inclusion in Cystic Fibrosis
Role of CFTR Arginine-933 in FDA-Approved Drug Potentiation - Stephen Aller, PhD (Video)
Role of CFTR Arginine-933 in FDA-Approved Drug Potentiation - Stephen Aller, PhD (Audio)
Pathways Balancing Basal Mucin and CFTR-Mediated Fluid Secretion in the Human Distal Airway - Kenichi Okuda, MD, PhD (Video)
Pathways Balancing Basal Mucin and CFTR-Mediated Fluid Secretion in the Human Distal Airway - Kenichi Okuda, MD, PhD (Audio)
Embracing the Future: Aging with CF - Ahmet Uluer, DO, MPH; CF and Colon Cancer: My Lived Experience - Anna Payne
Advances in mRNA Therapy: New Applications for Cystic Fibrosis - Deepika Polineni, MD, MPH
Inside The Art Of Dominic Quagliozzi - Part 2 (Video)
Inside The Art Of Dominic Quagliozzi - Part 1 (Video)
Inside The Art Of Dominic Quagliozzi - Part 2 (Audio)
Inside The Art Of Dominic Quagliozzi - Part 1 (Audio)
Understanding and Managing Pain in CF: A Biopsychosocial Approach - Amanda Bruce, PhD; Deborah Friedman, PhD
Improving CF Airway Mucociliary Clearance: Toward Transition from Animals to Humans - Carlos Milla, MD; Nam Soo Joo, PhD
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