The CFRI CF Community Voices Podcast
Health & Fitness
Dr. Ahmet Uluer, a medicine and pediatric trained pulmonologist and Director of the Adult Cystic Fibrosis Program at the combined Boston Children’s Hospital and Brigham & Women’s Hospital Adult Cystic Fibrosis Center, gives an overview of the impact of and risk associated with aging for people with CF, including GI cancers, complications associated with diabetes, hypertension, bone disease, hearing loss, kidney disease, cardiovascular disease, among others.
Anna Payne, a 36 year-old woman living with CF and colon cancer, shares the real-life impact that colon cancer has on people and what it is like to live with two diseases. Diagnosed at 34 - well before the recommended screening age of 40 – she is now seeking to educate others about the elevated risk that CF patients and carriers have of developing colon cancer. This joint presentation was part of CFRI's 36th National CF Education Conference.
CFRI's 36th National CF Education Conference was sponsored by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, AbbVie, Genentech, and the Boomer Esiason Foundation.
Unleashed Stories: CF Pet Perspectives (Video)
Unleashed Stories: CF Pet Perspectives (Audio)
Colon Cancer and CF: Panel (Video)
Colon Cancer and CF: Panel (Audio)
Recursos de asistencia a paciente
Cancer de Colon y Fibrosis Quistica
Diversity, Equity and Inclusion in Cystic Fibrosis
Role of CFTR Arginine-933 in FDA-Approved Drug Potentiation - Stephen Aller, PhD (Video)
Role of CFTR Arginine-933 in FDA-Approved Drug Potentiation - Stephen Aller, PhD (Audio)
Pathways Balancing Basal Mucin and CFTR-Mediated Fluid Secretion in the Human Distal Airway - Kenichi Okuda, MD, PhD (Video)
Pathways Balancing Basal Mucin and CFTR-Mediated Fluid Secretion in the Human Distal Airway - Kenichi Okuda, MD, PhD (Audio)
Panel: Parenting with CF - Lucy Barnes; Matthew DeFina; Carl Robinson; moderated by Mary Helmers, RN
Advances in mRNA Therapy: New Applications for Cystic Fibrosis - Deepika Polineni, MD, MPH
Inside The Art Of Dominic Quagliozzi - Part 2 (Video)
Inside The Art Of Dominic Quagliozzi - Part 1 (Video)
Inside The Art Of Dominic Quagliozzi - Part 2 (Audio)
Inside The Art Of Dominic Quagliozzi - Part 1 (Audio)
Understanding and Managing Pain in CF: A Biopsychosocial Approach - Amanda Bruce, PhD; Deborah Friedman, PhD
Improving CF Airway Mucociliary Clearance: Toward Transition from Animals to Humans - Carlos Milla, MD; Nam Soo Joo, PhD
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