We love any opportunity to have our friends from Massachusett’s General Hospital’s Down Syndrome Clinic on the show today we’re joined by Dr. Stephanie Santoro! Dr. Santoro, a renowned geneticist and pediatrician, discusses her impactful research in developing a Down syndrome instrument to enhance healthcare for individuals with Down syndrome. From prioritizing patient outcomes to filling gaps in resources, join us in exploring the unique aspects of health for those with Down syndrome and how research is vital to successful healthcare outcomes. Discover the insights gained from direct input, bridging the divide between medical guidelines and the lived experiences of individuals, caregivers, experts, and so much more! Be sure to check out the link in our show notes to be part of this important research survey!
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SHOW NOTES
Participate in the survey developed by Dr. Santoro that will help in the future of healthcare for individuals with Down syndrome!
Learn more about Massachusett’s General Hospital’s Down Syndrome Program
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--- Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support174. Learning About the Down Syndrome Learning Profile! (ft. Jessica Kuss from the National DS Society)
173. EVERYONE BELONGS by Heather Avis (Behind the Scenes of Her NEW Children's Book- Out NOW!)
172. Defining Ableism, Allyship & Advocacy + Redefining "Inclusion" - ft. Dr. Priya Lalvani
171. What does belonging actually mean? (Storytelling Tour Recap with Heather + Josh Avis!)
170. Why I Became A Pediatrician for Individuals with Down syndrome (ft. Dr. Kishore Vellody)
169. The Harm in Using People with Disabilities As "Inspiration" in Clickbait Viral Videos
168. When is it time to have "the talk" with your child with Down syndrome? (ft. Dr. Katie Frank, PhD, OTR/L)
167. Raising A #BossLady (ft. Rebecca Kutcher)
166. An Interview with An #IronFamily - ft. Jazmine & Chad Faries + Patrick Longstreth
165. Delivering HOPE w/A New DS Diagnosis (ft. Rick Smith, father + advocate!)
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157. Sibling Dynamics & Down Syndrome
156. From Special Educator to Education Advocate, ft. Markeisha Hall
155. A Candid Conversation About Raising a Child with A Dual Diagnosis
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