We love any opportunity to have our friends from Massachusett’s General Hospital’s Down Syndrome Clinic on the show today we’re joined by Dr. Stephanie Santoro! Dr. Santoro, a renowned geneticist and pediatrician, discusses her impactful research in developing a Down syndrome instrument to enhance healthcare for individuals with Down syndrome. From prioritizing patient outcomes to filling gaps in resources, join us in exploring the unique aspects of health for those with Down syndrome and how research is vital to successful healthcare outcomes. Discover the insights gained from direct input, bridging the divide between medical guidelines and the lived experiences of individuals, caregivers, experts, and so much more! Be sure to check out the link in our show notes to be part of this important research survey!
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SHOW NOTES
Participate in the survey developed by Dr. Santoro that will help in the future of healthcare for individuals with Down syndrome!
Learn more about Massachusett’s General Hospital’s Down Syndrome Program
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--- Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/supportTHROWBACK: Organ Transplant Discrimination Against People with Disabilities (ft. incredible advocates!)
THROWBACK: Diversity in the Down Syndrome Community
192. Tis' the Season!
191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP
190. Disability & The Church Pt 2
189. Motherhood, DS Advocacy, and Selling Funky Hawaiian Shirts (ft. Holly Simon, 21 Pineapples Shirt Co.)
188. Our 2022 Holiday Gift Guide!
187. Dental Anxiety & Down Syndrome (ft. Dr. Samantha Healy)
186. Our Response to the Ableist Comments on Netflix's "Love Is Blind"
185. What if my child with Down syndrome can't?
184. Busting Myths About Down Syndrome - ft. Madison Tevlin
183. Following the Lead of Self-Advocates (ft. Matthew Schwab)
182. A Day In the Life of Our Friend Jeremy (self-advocacy, independent living, + more)
181. How has your sibling changed your life? (ft. Dana & Anthony Sciullo from the NDSS team)
180. "You make me better" (An Interview with Carissa Carroll, Founder of Jack's Basket)
179. Disability & The Church
178. Healthy (and happy) Aging for Adults with DS - Ft. Margot & Bart from the National DS Society
177. Happiness IS Down Syndrome (ft. Misty Snyder)
176. The Ripple Effect (ft. Nancy & GiGi Gianni)
175. Back to School Listener Q & A!
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