Living Well with Multiple Sclerosis
Health & Fitness:Fitness
Welcome to Living Well with MS, where we are pleased to welcome Krystina Christiansen as our guest! Krystina is a filmmaker who has recently finished a documentary about an end-of-life letter she found, written by a man with MS.
Overcoming MS wants everyone to live a full and healthy life with MS, but it is inevitable that everyone, with or without MS, will pass away. It is therefore unhelpful that death is often a taboo subject. Krystina talks to Geoff about healthy ways to think about your own mortality, her new film, ‘Dear Brandon’ and planning ahead for your end of life, which is something that everyone needs to consider.
Keep reading for the key episode takeaways.
Topics and Timestamps:02:29 Krystina found an end-of-life letter from a man with MS on a mountain in Hawaii.
04:12 ‘Dear Brandon’ is a film about death and grief, but also hope and community.
10:41 Healthy ways to think about your own mortality.
12:31 Writing a will and planning your funeral.
14:55 Resources at the end of life.
18:00 Death doulas can help the dying and their families.
20:18 Death cafes are safe spaces to talk about mortality.
24:35 Follow along with Brandon’s story and Krystina’s films.
Selected Key Takeaways:Talking about death and dying doesn’t have to be taboo
07:03 “To know Brandon is to know someone who is going to die, he is on his deathbed. That's the social contract that you agree to when you become friends with him. I’d also like to point out that that's the social contract you have with everybody. It's just more obvious with him, I guess. I've learned that sometimes just talking about [death] does make it a bit easier for everyone.”
Make a plan for your funeral and estate
09:32 “Make sure that you plan for your death if it is something that we have the opportunity to do. Planning makes not only your end of life a bit smoother, but also for the ones you leave behind. It makes their lives a lot better and allows them to just focus on grieving versus dealing with the business of death.”
Death is not an emergency
19:05 “If you have someone in the home who passes away, you don't have to call anyone immediately. You can take your time and be with your loved one. There is no rush. You can even have people come over and say goodbye in the home. You can prepare the body in the home, there are so many different options.”
Want to learn more about living a full and happy life with multiple sclerosis? Sign up to our newsletter to hear our latest tips.
More info and links:Subscribe to this podcast and never miss an episode. Listen to our archive of Living Well with MS episodes here. If you like Living Well with MS, please leave a 5-star review.
Feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org.
Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS.
Support us:If you enjoy this podcast and want to support the ongoing work of Overcoming MS, we would really appreciate it if you could leave a donation here. Every donation, however small, helps us to share the podcast with more people on how to live well with MS.
The MS Fitness Challenge | S3E38
Coffee Break #18 with Rachel Knight | S3E37 bonus
The Joys of Volunteering | S3E37
Coffee Break #17 with Yasmin Neves | S3E36 bonus
NEU – What’s on the Research Horizon | S3E36
Ask Jack #2 | S3E35 bonus
Coffee Break #16 with Rick Nelson | S3E35 bonus
A Holistic Approach to MS Pain and Stress Management | S3E35
Coffee Break #15 with Rebecca Stonor | S3E34 bonus
Linda Bloom's OMS Journey | S3E34
Coffee Break #14 with Katy Deacon | S3E33 bonus
Ask Jack #1 | S3E33 bonus
The View from Shift.ms | S3E33
Coffee Break #13 with Luke Johnson | S3E32 bonus
2020: What Just Happened? And What to Expect in 2021 | S3E32
Pilates and MS: Building Strength for Everyone | S2E31
Coffee Break #12 with Alexandra Storey | S2E30 bonus
PPMS and OMS – How Do They Fit Together? | S2E30
Coffee Break #11 with Bron Webster | S2E29 bonus
A Personal Experience with MS – In Conversation with BBC Radio Presenter Erika North | S2E29
Create your
podcast in
minutes
It is Free
Good Mood Revolution
The Relaxback UK Show
Your Sleep Guru Podcast
Anxiety Slayer™ with Shann and Ananga
Sweat Daily with Kayla Itsines
Well Beyond 40