Friends, we’re so excited to have the brilliant Dr. Brian Skotko and Dr. Noemi Spinazzi back on the show today! They’re here to tell us about a big research project they worked on involving patients with Down syndrome who identify as Black as well as parents of patients who primarily speak Spanish. This work included conducting surveys of parents and primary care physicians from across the country over the last two years. Its primary goal was to identify the barriers for families looking to access adequate care that shouldn’t only be found at specialty Down syndrome clinics in large cities. We chat about structural racism in medical care, striving for cultural humility, some of the surprises they found in their research, and so much more. They share some valuable resources for those without access to a Down syndrome clinic and how we can all strive to be champions for the Down syndrome community. Thank you to Dr. Skotko and Dr. Spinazzi for their continued work in making sure everyone in the Down syndrome community has access to quality health care.
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SHOWNOTES:
Learn more about Down Syndrome Clinic To You
If you want to hear more from Dr. Skotko or Dr. Spinazzi, check out these episodes!
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--- Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support90. How To Advocate Right Where You Are
89. Let's Talk About Transitions. ft. Kenzie Clark
88. (Un)learning The Advocacy Language
87. Life Update: Moving Mishaps + More!
86. Palliative Care & Parenting Our Heroes w/Jen Bartz
85. Is Inclusion Always The Best Option?
84. Michelle Sie Whitten on Creating the Global DS Foundation, Media Representation, + More
83. So Everything's Going Wrong, Now What?
82. All things Speech & Feeding w/Shandy Laskey (CCC-SLP)
81. Pregnant In A Pandemic w/Abby Green
80. Assuming Intelligence in Our Kids w/Down Syndrome, ft. Dr. Sarathy
79. Understanding Functional Nutrition for Our Kids w/Down Syndrome, ft. Dr. Sarathy
78. Building Trust (not barriers) w/Your Child's IEP Team
77. Back to School or Back to the Screen? (Covid-19 & the Upcoming School Year ft. Dr. Spinazzi)
76. Making the Shift w/Kenny Clutch, “The Dancing Dad”
75. What makes a family? (Adoption + Motherhood w/Kayla Craig)
74. Building Brain Power in People w/Down Syndrome, ft. Dr. Brian Skotko
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72. What do we stand for? - A Conversation About #BLM, Protests, Resources, + More
71. Down Syndrome, Autism, & Motherhood w/Teresa Unnerstall
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