Wait, How Do You Spell That? A Rare Disease Podcast
Health & Fitness
Sunni speaks with Adam Settle and his family about the new book chronicling Adam's life with cobalamin C deficiency. The genetic condition can cause blindness, nervous system issues and other symptoms. Learn more about Adam and his book here: https://adamsettle.wordpress.com/
As mentioned in the intro, check out the "Fight the Swell" HAE podcast on YouTube here: https://bit.ly/3ojRV9Q
Young adults changing rare disease legislation, ft. Dan Pezatta from YARR
When your son has the sixth SYNGAP-1 diagnosis in the world- Ft. Monica Weldon from Bridge the Gap
You're not failing at self-care: staying okay-ish in a pandemic
Not just carriers ft. Taylor Kane from Remember the Girls
PKU is NOT like that time I was vegan!
Adulthood is hard! Ft. Anna from Our Odyssey (Live Recording)
Share your story! But only if you want to.
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