Sarc Fighter: Living with Sarcoidosis and other rare diseases
Health & Fitness:Medicine
Janet Mockovciak is in her 60's but she may have been fighting Sarcoidosis since she was a teenager! Janet has been an active outdoor person having traveled to Africa to follow gorillas, and Patagonia where she participated in all kinds of outdoor adventures. She will talk about how sarcoidosis has forced her to curtail her explorations -- and made her adopt a new normal. But she isn't giving up! At the end of the recent ski season, she took to the slopes with an oxygen tank in her backpack. Go Janet!
Janet is a fellow member of the Patient Advisory Council for the Foundation for Sarcoidosis research. As such she is helping to bring the patient voice to the Foundation to help ensure that our voice as patients is heard and acted upon by those on the front lines of fighting the disease.
Don't forget the upcoming FSR Summit on June 12 &13, 2021. Here is a link to sign up.
https://www.stopsarcoidosis.org/virtual-patient-education-summit-2021/
I recently moderated a conversation for FSR about dealing with prednisone. Almost all of us have dealt with it at one point or another. One doctor on the panel even called it, "poison."
Watch the Prednisone Town Hall on YouTube https://youtu.be/dNwbcBIyQhE
More on aTyr Pharma: https://www.atyrpharma.com/
Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser!
If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier
You can listen on You Tube as well. https://www.youtube.com/watch?v=MCbA3EDJ6Ak&list=OLAK5uy_ktdC7Pn7_ezhy4ZJzV_u7o76bqIv6cC6o
The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/
Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E
My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/
email me carlinagency@gmail.com
Sarc Fighter Facebook Page https://www.facebook.com/SarcFighter/
Sarc Fighter on Instagram https://www.instagram.com/thesarcfighter/
Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/
Episode 95 | FSR awards Dr. Christen Vagts $150,000 for critical research, and John puts his sarcoidosis in perspective.
Episode 94 | Tony Haskel returns to the podcast after a rough few months. And do pulmonary Sarc patients get a fair shake at transplant time?
Episode 93 | John tests his Sarcoidosis on assignemt on the U.S.- Mexico border with the National Guard.
Episode 92 | Researcher Dr. Stephen Tilley on where we got sarcoidosis
Episode 91| Promise from a new drug - and diagnosing neurosarcoidosis is hard.
Episode 90 | Mathew Campbell ’s Sarc went from his lungs to his heart. And FSR Crystal Gala highlights
Episode 89 | What does your DNA have to do with Sarcoidosis? An FSR Town Hall.
Episode 88 | MaryKay Reidenbach has been fighting the fight for 28 years.
Episode 87 | Writer Rebeccca Stanfel on the Pain from Sarcoidosis and Legitimate Need for Opioids.
Episode 86 | Betsy Bennett beat breast cancer - but Sarcoidosis arrived shortly after.
Episode 85 | An FSR Town Hall - Getting closer to the first ever drug designed to fight Sarcoidosis
Episode 84 | A patient story to go along with Sarcoidosis Awareness month and how FSR is leading the fight.
Episode 83 | Tony Haskel thought his heart was healthy. Then came Sarcoidosis.
Episode 82 | Sam Wassel’s unexplained abdominal pain was sarcoidosis - plus Cycle4Sarc goes public
Bonus Episode | FSR Town Hall - Uncovering the Future of Sarcoidosis Treatment and Clinical Trials
Episode 81 | Wade Tomlinson tries to walk away from sarcoidosis.
Episode 80 | John riffs on sarcoidosis clinical trial opportunities and ... Disney
Episode 79a | Royce Robertson is Fighting Sarcoidosis from the seat of his bike!
Episode 79 | Sarc Fighter Royce Robertson bares his sole while looking for a way to help fight Sarcoidosis
Episode 78 | Dr. John Belperio at UCLA has done a deep dive into the state of Sarcoidosis.
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