Sarc Fighter: Living with Sarcoidosis and other rare diseases
Health & Fitness:Medicine
Janet Mockovciak is in her 60's but she may have been fighting Sarcoidosis since she was a teenager! Janet has been an active outdoor person having traveled to Africa to follow gorillas, and Patagonia where she participated in all kinds of outdoor adventures. She will talk about how sarcoidosis has forced her to curtail her explorations -- and made her adopt a new normal. But she isn't giving up! At the end of the recent ski season, she took to the slopes with an oxygen tank in her backpack. Go Janet!
Janet is a fellow member of the Patient Advisory Council for the Foundation for Sarcoidosis research. As such she is helping to bring the patient voice to the Foundation to help ensure that our voice as patients is heard and acted upon by those on the front lines of fighting the disease.
Don't forget the upcoming FSR Summit on June 12 &13, 2021. Here is a link to sign up.
https://www.stopsarcoidosis.org/virtual-patient-education-summit-2021/
I recently moderated a conversation for FSR about dealing with prednisone. Almost all of us have dealt with it at one point or another. One doctor on the panel even called it, "poison."
Watch the Prednisone Town Hall on YouTube https://youtu.be/dNwbcBIyQhE
More on aTyr Pharma: https://www.atyrpharma.com/
Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser!
If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier
You can listen on You Tube as well. https://www.youtube.com/watch?v=MCbA3EDJ6Ak&list=OLAK5uy_ktdC7Pn7_ezhy4ZJzV_u7o76bqIv6cC6o
The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/
Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E
My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/
email me carlinagency@gmail.com
Sarc Fighter Facebook Page https://www.facebook.com/SarcFighter/
Sarc Fighter on Instagram https://www.instagram.com/thesarcfighter/
Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/
Episode 38 | Sarcoidosis is world wide. How they fight it in the UK
Episode 37 | Sarc Fighter Charlton Harris is having a hard time breathing. A REALLY hard time.
Bonus Episode | Sarcoidosis and COVID-19 Presented by the Foundation for Sarcoidosis Research
Episode 35 | Nadia Silvera may need a double lung transplant. Thanks sarcoidosis.
Bonus Episode | Sarcoidosis Town Hall: Is Prednisone "Poison?" presented by the Foundation for Sarcoidosis Research
Episode 34 Lindsey Norenberg on how to eat to beat inflammation.
Episode 33 | John Riffs on an encounter with a Doc who is not Sarc Aware!
Episode 32 | April is Sarcoidosis Awareness month! Tricha Shivas tells us how to fight back!
Episode 31 | Susan Bassi's Life slowed to a crawl when Sarcoidosis made its appearance.
Episode 30 Kevin McDevitt's sarcoidosis spread from his finger ... to his heart!
Episode 29 Susie Torres fights for diagnosis as she battles Sarc and other illnessess. And - I explore the anti-inflammatory Elimination Diet
Episode 28 Sarc Fighter Andrena Johnson is making a Sacroidosis Documentary
Episode 27 Diet and CBD - Can they be effective? Ryan Norenberg offers proof.
Episode 26 Amy Cobb is a Nurse Practitioner treating COVID Patients - And Fighting Sarcoidosis in Her Own Body.
Episode 25 Tracy Bawtinheimer was a world traveling executive until...
Episode 24 Sarc Fighter Frank Rivera fights long Covid-19
Episode 23 Even doctors can get sarcoidosis. Taufiq Ahmad shares the story of his decline.
Episode 22 Meet Mary McGowan the new CEO of the Foundation for Sarcoidosis Research
Episode 21 Why Sarc is more prevalent in women with Ozioma Chioma PhD
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