Wait, How Do You Spell That? A Rare Disease Podcast
Health & Fitness
This episode features Kecia Johnson, an author, music industry veteran and motivational speaker who was diagnosed with HIV/AIDS in her early 20s, and also with a rare form of stage-3 colorectal cancer at age 35. Kecia has been an outspoken patient advocate who has appeared in OutSmart Magazine, Shoutout Atlanta, many different podcasts and also a Walgreen’s ad campaign.
Keep up with Kecia: https://linktr.ee/KeciaJ
Chronic conditions and rare diseases don’t discriminate. Patient Worthy and our partners are interested in amplifying the voices of those from all identities and backgrounds. If you have a story to share, learn more about how your voice can help spread awareness and inspire individuals from all walks of life here: https://shorturl.at/sPV02
When your son has the sixth SYNGAP-1 diagnosis in the world- Ft. Monica Weldon from Bridge the Gap
You're not failing at self-care: staying okay-ish in a pandemic
Not just carriers ft. Taylor Kane from Remember the Girls
PKU is NOT like that time I was vegan!
Adulthood is hard! Ft. Anna from Our Odyssey (Live Recording)
Share your story! But only if you want to.
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