Wait, How Do You Spell That? A Rare Disease Podcast
Health & Fitness
This week, we speak with Annie Kennedy from the EveryLife Foundation about their groundbreaking study examining the economic burden of rare disease. We're joined by Marissa Penrod from Team Joseph, a Duchenne muscular dystrophy nonprofit to discuss how these numbers assist in rare disease advocacy. Read the full study here: www.everylifefoundation.org/burden-study
Learn more about the EveryLife Foundation for Rare Diseases here: www.everylifefoundation.org
Learn more about Team Joseph here: www.teamjoseph.org
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