•Barbara's story•
I was diagnosed with OM in April 2015.
My optometrist found the tumor on a routine eye exam, and then referred me to the retinal specialist.
I had a medium sized tumor with plaque treatment (4 days).
I had the muscle released to insert the plaque. I didn't have tumor testing because insurance wouldn't pay for it in 2015.
I have 20/40 vision in my right eye. I had a cataract removed, a laser surgery and now get regular Avastin shots.
I was tested for the inherited BAP1 tumor predisposition syndrome gene due to a family history of cancer and found out last spring that I have the gene.
•Dianna's Story•
Hi my name is Dianna Beck! I was diagnosed with OM in February 2018 and had enucleation at Stanford. I was 30 at the time of diagnosis and had blurry vision in my left eye for about a month before we found my tumor. It was wrapped around my optic nerve so I would have not had any vision if we had done radiation. My tumor was class 1A but PRAME+, and I found out I have the BAP1 germline mutation. It’s been about 3 years since my diagnosis, surgery, and prosthetic eye. I get MRIs every 6 months currently.
E81 Q3 Webinar: The History and Future of OM with Dr. Harbour & Dr. Correa
E80: Worrying didn’t work: An OM Story, Guest Ellie Levine
E79: Special Research Call Out for OM patients, Guest Jennifer Stephens
Eye on Research - Key MUM Drugs & ARVO Updates w/ Dr. McKean, Dr. Moser, & Dr. Dalvin
EYE ON RESEARCH -Trials of Interest w/ Dr. Hamid and Dr. Carvajal
EYE ON RESEARCH 2023 - PERIO - 01 Update with Dr. Katz
E78: Biopsies & Prognostic Testing of the Eye, Guest Dr. Basil K. Williams
E77: Newsworthy Notes from ASCO 2023
E76: Will we SEE YOU in Seattle in September 2023?!
E75: Queer in Sight: PRIDE Month Perspectives
E74: Eye Just Turned 2 - A Story of Resilience in Cancer, Guest, Dean Weitenhagen
E73: Choosing Integrative Oncology - Patient Panel
E72: What is Integrative Oncology? Guest, Dr. Dan Rubin
E71: What is an ocularist? Guest, Starla Allen
E70: Navigating Clinical Trials 101, Guests, Kelly Goddard & Shahnaz Singh
E69: Mexico’s Eye Cancer Institute, with founder. Dr. David Ancona
E68: News From AACR 2023
E67: Who is Immunocore? Guest, Dr. Dar
E66: Protecting Your Mental Health, Guest, Dr. Sanger
E65: Pros & Cons of Radiation to the Eye, Guest, Dr. Basil K. Williams
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