•Barbara's story•
I was diagnosed with OM in April 2015.
My optometrist found the tumor on a routine eye exam, and then referred me to the retinal specialist.
I had a medium sized tumor with plaque treatment (4 days).
I had the muscle released to insert the plaque. I didn't have tumor testing because insurance wouldn't pay for it in 2015.
I have 20/40 vision in my right eye. I had a cataract removed, a laser surgery and now get regular Avastin shots.
I was tested for the inherited BAP1 tumor predisposition syndrome gene due to a family history of cancer and found out last spring that I have the gene.
•Dianna's Story•
Hi my name is Dianna Beck! I was diagnosed with OM in February 2018 and had enucleation at Stanford. I was 30 at the time of diagnosis and had blurry vision in my left eye for about a month before we found my tumor. It was wrapped around my optic nerve so I would have not had any vision if we had done radiation. My tumor was class 1A but PRAME+, and I found out I have the BAP1 germline mutation. It’s been about 3 years since my diagnosis, surgery, and prosthetic eye. I get MRIs every 6 months currently.
E50: The One-Eyed Cooking Show with Alec MacKenzie
Eye Believe 2022: D2T2 ”Healing with your story”
Eye Believe 2022: D2T2 ”What we can expect of our friends after an OM diagnosis”
Eye Believe 2022: D2T2 ”Low Vision Resources”
Eye Believe 2022: D2T2 ”Navigating Insurance” with Triage Cancer
Eye Believe 2022: Patient Mini Interview Panel
Eye Believe 2022: D2T1 ”Your Eye After Treatment”
Eye Believe 2022: D2T1 ”Standards of Care for Uveal Melanoma”
Eye Believe 2022: D2T1 ”KIMMTRAK approved; NOW WHAT?”
Eye Believe 2022: D2T1 Ocular Melanoma Met’s Explained
Eye Believe 2022-Welcome with Dr. Reichstein
E48: Shared decision Making with Patients with Dr. Patel
E45: Radical Acceptance in an OM Diagnosis with Allie, age 26
Eye Believe 2022: D1 ”Understanding a registry?”
E47: Managing METS & Clinical Trials with Dr. Carvajal
E46: The Importance of Self-Compassion with Dr. Kristin Markell
Eye Believe 2022:D1 ”Art and Music Therapy”
Eye Believe 2022 D1:”Talking to children about Cancer”
Eye Believe 2022: D1 ”What to do in the waiting room”
E44: NED to METS in 3 month span with Kat McCrea
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