Sarc Fighter: Living with Sarcoidosis and other rare diseases
Health & Fitness:Medicine
Dr. John Belperio has been looking at dozens of studies on sarcoidosis, drilling down and figuring out exactly where medical science is with respect to pulmonary sarc. How often is it fatal? What are the best treatments? What can we say about the way sarcoidosis attacks the body? He's published his review in JAMA, the Journal of the American Medical Association, and now shares his findings here on the FSR Sarc Fighter podcast!
Show Notes
Kinevant Clinical Trial https://bit.ly/3DaVsR6
More about Kinevant: https://kinevant.com/about-us/
The FSR ACTe now webpage: https://www.stopsarcoidosis.org/actnow/
Take the FSR Survey: https://rx4good.qualtrics.com/jfe/form/SV_4MYoU9YGjvAbuJg
Help FSR further its mission by becoming an Alliance Volunteer: www.stopsarcoidosis.org/gsca-leaders/
Become s community outreach leader: https://www.stopsarcoidosis.org/gsca-leaders/
Webinar on becoming an Alliance Volunteer: https://www.eventbrite.com/e/becoming-an-fsr-global-sarcoidosis-clinic-alliance-volunteer-leader-tickets-445588847237
MORE FROM JOHN
Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/
Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser!
If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier
The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/
Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E
My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/
email me carlinagency@gmail.com
Episode 76 | Leeanne West is a scientist who discovered Sarcoidosis in her own life.
Episode 75 | FSR Leaders Dr. Louise Perkins and CEO Mary McGowan on all the current progress.
Episode 74 | A Doctor and Two Sarc Fighters Urge Black Americans to Join Clinical Trials
Episode 73 | FSR is looking for a few good volunteers. Maybe you.
Episode 72 | Sarc Fighter Regina Gordon shares her battle.
Episode 71 | Andrew Brandt is fighting back - for all of us.
Episode 70 | Laura Ward thought she had cancer... but it was sarcoidosis.
Episode 69 | Kinevant Sciences is researching namilumab – a potential new drug for sarcoidosis
Episode 68 | Profound thoughts from a dying man.
Episode 67 | Kristi Hedge begins her sarcoidosis journey.
Episode 66 | Unveiling Possibilities - All about the upcoming Sarcoidosis Summit from the Foundation for Sarcoidosis Research
Episode 65 | aTyr Pharma is getting closer to a potential breakthrough in treating Sarcoidosis
Episode 64 | The Leadership Team at the Foundation for Sarcoidosis Research with an exciting announcement!
Episode 63 | The birds and finding contentedness
Episode 62 | Garrie Farrow had troubles wearing her cute shoes. The problem was in her lungs.
Episode 61 | Expectations and Happiness with Sarcoidosis
Episode 60 | Jack Boepple’s cardiac sarcoidosis hit him like a linebacker. And he would know.
Episode 59 | Angelica wants to know how her grandmother died.
Episode 58 | Time to get ready for Sarcoidosis Awareness Month!
Episode 57 | Sarc Patient Robin Goble has lost her balance, but she’s fighting to keep her life upright.
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