Sarc Fighter: Living with Sarcoidosis and other rare diseases
Health & Fitness:Medicine
Dr. John Belperio has been looking at dozens of studies on sarcoidosis, drilling down and figuring out exactly where medical science is with respect to pulmonary sarc. How often is it fatal? What are the best treatments? What can we say about the way sarcoidosis attacks the body? He's published his review in JAMA, the Journal of the American Medical Association, and now shares his findings here on the FSR Sarc Fighter podcast!
Show Notes
Kinevant Clinical Trial https://bit.ly/3DaVsR6
More about Kinevant: https://kinevant.com/about-us/
The FSR ACTe now webpage: https://www.stopsarcoidosis.org/actnow/
Take the FSR Survey: https://rx4good.qualtrics.com/jfe/form/SV_4MYoU9YGjvAbuJg
Help FSR further its mission by becoming an Alliance Volunteer: www.stopsarcoidosis.org/gsca-leaders/
Become s community outreach leader: https://www.stopsarcoidosis.org/gsca-leaders/
Webinar on becoming an Alliance Volunteer: https://www.eventbrite.com/e/becoming-an-fsr-global-sarcoidosis-clinic-alliance-volunteer-leader-tickets-445588847237
MORE FROM JOHN
Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/
Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser!
If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier
The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/
Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E
My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/
email me carlinagency@gmail.com
Episode 57 | Sarc Patient Robin Goble has lost her balance, but she’s fighting to keep her life upright.
Episode 56 | Dr. Shu-Yi Liao wants to know how sarcoidosis moves in the body.
Episode 55 | Erica Courtenay-Mann Has Sarcoidosis on her Vocal Cords. But she is speaking out!
Bonus Episode | Universal Barriers in Dealing with a Chronic Disease: A Sarcoidosis Perspective
Episode 52 | Dr Divya Patel and Novartis are looking for a few good Sarc patients
Episode 54 | Calvin Harris’ lungs are clogged with Sarcoidosis -- but he wants to run a marathon.
Episode 53 | Reasons for hope in the fight against Sarcoidosis in 2022
Episode 51 | Amy Whaley fights on through a life that was different than she imagined.
Episode 50 | Warren Robinson‘s father died suddenly. And the family struggled to find out why.
Episode 49 | Adam Bernardi has sarc in all the wrong places.
Episode 48 | Dr. Jinny Tavee is a neurosarcoidosis specialist with a unique approach to fighting the disease
Episode 47 | Women of Color Fight Back!
Episode 46 | Lisa Pflug is early in her journey with neurosarcoidosis, but already suffering the effects.
Episode 45 | Fantastic results from trial of new sarcoidosis drug from aTyr Pharma
Episode 44 | Brandi Cleaver faces down what may be a terminal case of sarcoidosis.
Episode 43 | Joe McCorry has been fighting Sarcoidosis for a long, long time.
Episode 42 | Juliet Coffer can barely walk without losing her breath. But she was determined to step up to fight sarcoidosis.
Episode 41| Dr. Matt Baker is researching a promising new drug to fight sarc at Stanford University.
Episode 40 | Writer Rebecca Stanfel is bringing the sarcoidosis message to the masses. And, man, does she know the story.
Episode 39 | Dr. William Damsky may be on the verge of a sarcoidosis breakthrough.
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