AiArthritis Voices 360 Talk Show
Education
Patient Voices and All Other Stakeholders - Join our AiArthritis Voices Program and Connect to Opportunities to Have Your Voice Counted!
If you are a patient, a parent of a juvenile patient, or any other stakeholder (doctor, nurse, researcher, industry representative, or other health services person) - are you ready to join the conversation? It's your turn to pull up a seat. Join our new AiArthritis Voices program, where people living with AiArthritis diseases and other stakeholders who we need 'at the table' to solve problems that impact education, advocacy, and research sign up to have a voice in our initiatives. By signing up, you’ll get notified of opportunities to be more involved with this show - including submitting post-episode comments and gaining insider information on future show topics. Patients and all other stakeholders are encouraged to join so we can match you with opportunities to pull up a seat and TOGETHER - as equals - solve the problems of today and tomorrow.
JOIN TODAY!
AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@ifAiArthritis) or email us (podcast@aiarthritis.org).
Be sure to check out our top-rated show on Feedspot!
Show Notes: Episode 9 – “Changing the world with your knee tissue - investing in our future”
00:51 – Tiffany welcomes listeners to a touring episode recorded at the American College of Rheumatology Annual Meeting featuring rheumatologist and clinical researcher, Dr. Aurélie Najm
02:10 - Tiffany is joined by patient co-host Deb Constein
02:44 – Aurélie introduces herself
02:57 - She is researching providing tailored treatments to patients with rheumatoid arthritis
03:22 - Aurélie is the co-chair of the EULAR Synovitis Study Group, which is studying synovial tissue to determine the best treatment for each patient
05:10 - Cellular dysfunction in the synovial membrane causes synovitis (or inflammation of the synovial lining in joints)
07:30 - Patterns of inflammation within the synovial tissue can predict the future evolution of disease for that patient and which anti-rheumatic drugs may be more effective for that patient
10:56 - Deb discusses her experience with joint biopsy procedures
13:34 - The two methods available for obtaining synovial samples from joint spaces are arthroscopic or ultrasound guided biopsy
15:58 - Arthroscopic biopsy may be more precise due to the ability to visualize the inflammation when choosing a sample site
17:31 - Please consider providing input on what questions you have about synovial biopsies or participating in clinical research by visiting our website
19:41 - What would be the barriers and benefits to you as a patient participating in clinical research?
20:44 - Explaining the purpose of any procedure to the patient, especially when procedures are for clinical research and not necessity, is critically important.
22:11 - Volunteering for procedures to support clinical research is “an investment in the future.”
23:00 - Tiffany invites everyone to visit www.aiarthritis.org/podcast to access resources and provide your thoughts on this topic
23:34 - Tiffany thanks Aurélie for her time
24:56 - Researchers need patients to participate in clinical trials to benefit the entire AiArthritis community
25:10 - IFAA seeks to help researchers develop the right protocols to recruit patient participants
26:03 - Visit aiarthritis.org/podcast to learn how you can help
Episode 79 : Patient Leadership In Research
Ep 78 Diversity Equity Inclusion and Access
Episode 77: Biosimilars - What patients need to know
Episode 76: COVID in 2022 - Evolving Concerns, Questions, and Opinions
Episode 75: The Whole Picture: Holistic, Personalized Therapy
Episode 74: EveryONE’s Voice ’Precisely’ Matters
Episode 73: ”Arthritis” Awareness - It’s Complicated!
Episode 72 The Myth of Average: Time for Change
Episode 71: Supporting Me, Supporting You, Supporting Us - Revisit to the Table
Episode 70: The Future of Shared-Decision Making & E-Health in Rheumatology Starts with YOU! Revisit to the Table
Episode 69: Changing the World from Your Sofa! Meet the Volunteers
Episode 53: FDA Public Meeting Opportunity - Patients ”at the table”
Episode 68: Rant Ahead! Together We Can Make Change
Episode 67: Making Informed Decisions in Unprecedented Times - Focus on Actemra Shortage
Episode 66: The Pathway of Patient Engagement in Rheumatology Research
Episode 65: Young and Invisible
Episode 64: The office visit - viewpoints from both the patients AND the rheumies!
Episode 63: COVID-19, Vaccinations, Shared-Decision Making, & Rheumy Communications
Episode 62: Patient-Reported EULAR2021 Debriefs ... and We‘re Off!
Episode 61: 2021 Charity Talk
Create your
podcast in
minutes
It is Free
Navigating Life After 40
Teaching Learning Leading K-12
Regenerative Skills
The Jordan B. Peterson Podcast
The Mel Robbins Podcast