AiArthritis Voices 360 Talk Show
Education
Patient Voices and All Other Stakeholders - Join our AiArthritis Voices Program and Connect to Opportunities to Have Your Voice Counted!
If you are a patient, a parent of a juvenile patient, or any other stakeholder (doctor, nurse, researcher, industry representative, or other health services person) - are you ready to join the conversation? It's your turn to pull up a seat. Join our new AiArthritis Voices program, where people living with AiArthritis diseases and other stakeholders who we need 'at the table' to solve problems that impact education, advocacy, and research sign up to have a voice in our initiatives. By signing up, you’ll get notified of opportunities to be more involved with this show - including submitting post-episode comments and gaining insider information on future show topics. Patients and all other stakeholders are encouraged to join so we can match you with opportunities to pull up a seat and TOGETHER - as equals - solve the problems of today and tomorrow.
JOIN TODAY!
AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@ifAiArthritis) or email us (podcast@aiarthritis.org).
Be sure to check out our top-rated show on Feedspot!
Show Notes: Episode 9 – “Changing the world with your knee tissue - investing in our future”
00:51 – Tiffany welcomes listeners to a touring episode recorded at the American College of Rheumatology Annual Meeting featuring rheumatologist and clinical researcher, Dr. Aurélie Najm
02:10 - Tiffany is joined by patient co-host Deb Constein
02:44 – Aurélie introduces herself
02:57 - She is researching providing tailored treatments to patients with rheumatoid arthritis
03:22 - Aurélie is the co-chair of the EULAR Synovitis Study Group, which is studying synovial tissue to determine the best treatment for each patient
05:10 - Cellular dysfunction in the synovial membrane causes synovitis (or inflammation of the synovial lining in joints)
07:30 - Patterns of inflammation within the synovial tissue can predict the future evolution of disease for that patient and which anti-rheumatic drugs may be more effective for that patient
10:56 - Deb discusses her experience with joint biopsy procedures
13:34 - The two methods available for obtaining synovial samples from joint spaces are arthroscopic or ultrasound guided biopsy
15:58 - Arthroscopic biopsy may be more precise due to the ability to visualize the inflammation when choosing a sample site
17:31 - Please consider providing input on what questions you have about synovial biopsies or participating in clinical research by visiting our website
19:41 - What would be the barriers and benefits to you as a patient participating in clinical research?
20:44 - Explaining the purpose of any procedure to the patient, especially when procedures are for clinical research and not necessity, is critically important.
22:11 - Volunteering for procedures to support clinical research is “an investment in the future.”
23:00 - Tiffany invites everyone to visit www.aiarthritis.org/podcast to access resources and provide your thoughts on this topic
23:34 - Tiffany thanks Aurélie for her time
24:56 - Researchers need patients to participate in clinical trials to benefit the entire AiArthritis community
25:10 - IFAA seeks to help researchers develop the right protocols to recruit patient participants
26:03 - Visit aiarthritis.org/podcast to learn how you can help
At The Table Episode 24: E-Health: Taking Our Healthcare Online - What‘s Working and What Isn‘t?
Episode 26: Global Awareness - Your story can impact change
At The Table Episode 23: Identities Matter: Pronouns & the Online Community
Episode 25: ONLINE AUTO Ball - Still changing the world from our sofas
At The Table Ep 22 COVID-19 and Pets
Episode 24: Ethnic diversity in clinical trials - we are all unique so all voices must be counted!
At The Table Ep 21: COVID-19 & Gloves - Handy precautions to keep you safe
COVID-19 Special Series: Masks - Who should wear what and why?
At The Table Ep 20: COVID-19 is #NotMyNewNormal
AiArthritis Voices 360 Revisited: Highlighting the Experts - Patients, Researchers, & Rheumies
At The Table Ep 19 Myth Busting CBD and COVID-19
#HighRiskCOVID19: Reality Check from the Immunocompromised Community
At The Table Ep 18 Meet Your New CoHosts!
COVID-19 & AiArthritis: Special Series: Ask the Rheumy with Dr. Kim & Matt Iseman, host of American Ninja Warrior
Episode 19 COVID-19 & AiArthritis Special Series: Pandemics & Patient Organizations
Episode 18 The Juggling Act: Living with Multiple Conditions
At The Table Ep 17 World AiArthritis Day
Episode 17 Discrimination in the Workplace
At The Table Ep 16 Unpredictable Diseases in a Need-to-be- Predictable Environment
Episode 16 CBD: It‘s Everywhere!
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