Wait, How Do You Spell That? A Rare Disease Podcast
Health & Fitness
In this episode of the podcast we discuss neuromyelitis optica spectrum disease (NMOSD), a rare autoimmune disease that effects central nervous system function and can result in symptoms such as pain, vision loss, limb weakness and numbness. Joining us are Dr. Maggie Kang and Nell Choi, mother and daughter patient advocates who talk about NMOSD and their experiences since Nell was diagnosed at a young age.
To learn more about NMOSD go here: NMOSD at the National Organization for Rare Disorders
You can pick up a copy of Nell's book here: My Hospital Story - Amazon
Learn About Dr. Kang's work supporting the wellbeing of parents of children with rare conditions here: MaggieKangMD.com
When your son has the sixth SYNGAP-1 diagnosis in the world- Ft. Monica Weldon from Bridge the Gap
You're not failing at self-care: staying okay-ish in a pandemic
Not just carriers ft. Taylor Kane from Remember the Girls
PKU is NOT like that time I was vegan!
Adulthood is hard! Ft. Anna from Our Odyssey (Live Recording)
Share your story! But only if you want to.
Join Podbean Ads Marketplace and connect with engaged listeners.
Advertise Today
Create your
podcast in
minutes
It is Free
Good Mood Revolution
The Relaxback UK Show
Your Sleep Guru Podcast
Anxiety Slayer™ with Shann and Ananga
Nothing much happens: bedtime stories to help you sleep
The Gary Null Show