Wait, How Do You Spell That? A Rare Disease Podcast
Health & Fitness
On this episode, Managing Editor Ilana Bean has a conversation with Amy Dahm, the head of Cushing's Support and Research Foundation patient support group for Washington, D.C., Maryland and Virginia. The interview was recorded at Rare Disease Week 2020 in February.
When your son has the sixth SYNGAP-1 diagnosis in the world- Ft. Monica Weldon from Bridge the Gap
You're not failing at self-care: staying okay-ish in a pandemic
Not just carriers ft. Taylor Kane from Remember the Girls
PKU is NOT like that time I was vegan!
Adulthood is hard! Ft. Anna from Our Odyssey (Live Recording)
Share your story! But only if you want to.
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